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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@Sasha Did you see Dr Spickett in the end? My GP has just referred me...
No I didn't - kind of wish I had. Good luck!
Thanks Apparently he has a keen eye for missed or mis-diagnoses. I spoke to my NHS specialist today and she said if I still had questions regarding my diagnosis Dr Spickett is the man to talk to. He is apparently 'extremely thorough'. My mum tells me he wrote a paper on misdiagnoses and found that >40% of people referred to him weren't diagnosed correctly
Hi could you possibly let me know what happens at the appointment with Dr Spickett as I am currently waiting for my appointment to come through. I am new to all of this! Many thanksI've seen Dr Spickett, I've PM'd you.
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Hi could you enlighten me on what happens at the appointment with Dr Spickett as I am currently awaiting an appointment date? I would be really grateful thankyouI've seen Dr Spickett, I've PM'd you.
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Hi Carole I am new here so reading through some old posts I know! Is it possible you can let me know how your apppointment went as I have been referred and am waiting for a date! PM me if you would rather - I would be very grateful thanksHi Everyone...I am due to go see Dr Spickett in a week or so after having been referred by GP. I've had ME 14/15 years and was initially diagnosed up In Edinburgh. My GP wondered if they might have some help for me so I go there at the beginning of July. Like you Sasha I am conflicted and wondering what they will offer me. Did you eventually go?
morgaine...could you PM me please with any advice/info you have on this clinic at the RVI or on Dr Spickett please.
Thanks ...Carole.
Did you get on well at your appointment with Dr Spickett? I am just waiting for a date to come through and would be grateful for any advice /pointers you can give me thanks@Sasha Did you see Dr Spickett in the end? My GP has just referred me...