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Hey guys,
I have been looking throughout the forums to see if anyone else has mentioned problems with visual distortions and whilst I am sure somebody must have (perhaps?) I can't find anything about it.
Aside from the fatigue (immediate or delayed) the biggest problem I have is with my vision. Ever since I first became ill I have had problems trying to look at things without my vision distorting. It is not a problem of focusing, everything is in focus but if i try and concentrate on an object my vision jerks in time with my pulse. It is as if swelling in my head is pushing against my eyes making it impossible to concentrate on single objects. When it is bearable, objects which i focus on only shift if i am looking out of the corner of my eyes. When it is bad, it is really bad and I literally can't look at anything because everything is moving.
The problem always gets worse if i do anything to speed up my heart rate. If my pulse is going faster then the objects i try to focus on jerk more quickly. As a result, even when I was feeling well enough to trying to do some sort of semi-exerting activity, as soon as i start, my vision starts jerking in time with my heart rate and this distorting effect gets worse and worse the longer I continue to do any activity until i have to stop. Has anyone else had a problem like this? if so, has anyone ever worked out how to stop it? I have found that the more run down I feel the worse it is, but resting for weeks/months never completely removes the problem. It always starts up again once I try being more active again.
I'm probably not doing a very good job of explaining this but it is such a weird symptom I find it hard to put into words, even after 14 years. Does anyone know what could possibly be the cause of this issue?
Thanks
I have been looking throughout the forums to see if anyone else has mentioned problems with visual distortions and whilst I am sure somebody must have (perhaps?) I can't find anything about it.
Aside from the fatigue (immediate or delayed) the biggest problem I have is with my vision. Ever since I first became ill I have had problems trying to look at things without my vision distorting. It is not a problem of focusing, everything is in focus but if i try and concentrate on an object my vision jerks in time with my pulse. It is as if swelling in my head is pushing against my eyes making it impossible to concentrate on single objects. When it is bearable, objects which i focus on only shift if i am looking out of the corner of my eyes. When it is bad, it is really bad and I literally can't look at anything because everything is moving.
The problem always gets worse if i do anything to speed up my heart rate. If my pulse is going faster then the objects i try to focus on jerk more quickly. As a result, even when I was feeling well enough to trying to do some sort of semi-exerting activity, as soon as i start, my vision starts jerking in time with my heart rate and this distorting effect gets worse and worse the longer I continue to do any activity until i have to stop. Has anyone else had a problem like this? if so, has anyone ever worked out how to stop it? I have found that the more run down I feel the worse it is, but resting for weeks/months never completely removes the problem. It always starts up again once I try being more active again.
I'm probably not doing a very good job of explaining this but it is such a weird symptom I find it hard to put into words, even after 14 years. Does anyone know what could possibly be the cause of this issue?
Thanks