Results of survey of 305 people with MCS (DePaul/Leonard Jason study from 1990s)

[Tom Kindlon]

I gave away most of my old CFIDS Chronicles (old magazine of the CFIDS Association of America) recently**. I made a copy of the following and thought I'd highlight it as I thought if I don't, the info might be lost.

* I have over 200 Lever arch files of stuff relating to ME so lots of stuff eventually gets thrown out as I only have so much space

** MCS=Multiple Chemical Sensitivities

 

[taniaaust1]

Thanks. I have a meeting Monday and were needing info to show MCS is an issue with ME/CFS (my states disability service dont believe ME/CFS causes a lot of the issues I have), so this info you have just given is going to be very handy for me.

 

[South]

I'm surprised that survey didn't list things to raise Phase II liver detox, which has far more logic and promise to be helpful than many of the things they did list.

 

[MeSci]

Thanks. I have a meeting Monday and were needing info to show MCS is an issue with ME/CFS (my states disability service dont believe ME/CFS causes a lot of the issues I have), so this info you have just given is going to be very handy for me.

I don't think it provides strong evidence, as it is based on self-reporting. Also, if you look at the respondent profile at the end, the difference between the proportion who have ME and those who don't is not very great.

I was interested to discover recently that I have genetic variations that affect the body's ability to detoxify itself.