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Thanks.
I can't remember if the PACE CBT manual includes stuff about 'overcoming a reliance on caregivers' type stuff. I've seen that sort of thing in other CBT plans...
I just checked the shorter participants guide for CBT and found this:
Ugh... I really felt dirty reading some of the other parts of that. I think that the more I read of this stuff, the more I hate it.
More generally I think there would be a real danger that interventions founded upon models that assume patients have greater control over their symptoms would also be more likely to lead to a degree of response bias in questionnaires on the amount of support taken.
I had a look though the APT participants guide and couldn't find anything similar.
I don't think it's fair to assume that this would lead to people with APT to make use of more support, but I found it, so many as well post it here too.
tbh, I didn't much like reading the APT guide either!
I can't remember if the PACE CBT manual includes stuff about 'overcoming a reliance on caregivers' type stuff. I've seen that sort of thing in other CBT plans...
I just checked the shorter participants guide for CBT and found this:
6) The “wrong” kind of social support
This may seem a contradiction in terms! The examples below illustrate how the wrong
kind of support can make it more difficult for you to move forward for the following
reasons:
• If you have a very supportive family member (partner, parent or child) who is used to
doing everything for you, it may be difficult for you to increase your activity levels.
Your relative may feel that they have your best interest at heart and discourage you
from doing more. They may have difficulty accepting that in order to make progress,
you need to do things at regular times even if you are feeling very fatigued. If family
members have been your “carer” during your illness, they can sometimes feel that
they no longer have a role when you are getting better which can sometimes lead
them to be critical of your CBT programme or suggest that you are making yourself
worse. This may then lead you to question the validity of the programme and deter
you from persevering with it particularly when you have a lot of symptoms.
Ugh... I really felt dirty reading some of the other parts of that. I think that the more I read of this stuff, the more I hate it.
More generally I think there would be a real danger that interventions founded upon models that assume patients have greater control over their symptoms would also be more likely to lead to a degree of response bias in questionnaires on the amount of support taken.
I had a look though the APT participants guide and couldn't find anything similar.
I don't think it's fair to assume that this would lead to people with APT to make use of more support, but I found it, so many as well post it here too.
Identify the problem
• What needs to be done?
• What are the steps involved?
• What are the energy requirements of each step and the task as a
whole?
• Who and what else is involved? When thinking about the actual
problem it is worth identifying anybody else involved. What part if any
do they play in generating the problem? What help, practical or
emotional, can/can’t they provide? Do they know and understand the
principles of APT, and if not is it important that they do so?
What are the available solutions?
• Brainstorm tried and tested solutions (what has previously worked).
Revisit solutions you may have previously written off as unusable or
impossible. Use your imagination and be creative, even the most
outlandish possibilities are worth considering.
• Can any of these potential solutions be modified in any way? Use your
knowledge of activity/task analysis. If you were to utilise the support of
others or were to undertake only a smaller component of the task
would this allow you to remain within your energy envelope?
tbh, I didn't much like reading the APT guide either!