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Hi!
I have severe ME (have had it since I was 11, I'm now 25) but was also diagnosed with pots & ehlers danlos type 3 in 2011, I have recently been seeing an immunologist who has an interest in mast cell in Oxford (UK). I saw him yesterday regarding my results and he's discovered my immune system is apparently overactive, I am prone to recurrent tonsillitis and bladder infections (currently waiting to have a bladder biopsy as I have recently discovered my bladder is twice the normal size). He said my immune system needs boosting, I am not covered for tetanus, I had an allergic reaction to it when I was younger. I also became unwell after the meningitis c vaccine when I was 11. He suggested I go into hospital to have the following vaccines 'pneumovax II' and 'menitorix'. Basically I am concerned of the effect this will have on my ME and are there any papers to suggest vaccinations make ME worse? I am in limbo as to what to do as he says this will make my body produce antibodies which in turn will produce one of the things I'm very low in (I can't remember the name of it but he said there is no other way to boost it?). I'm in limbo - alongside this I am trialling high dose antihistamines for mast cell after my bladder biopsy, but with regards to the immune issues I don't know what to do.
Any help/advice would be great, I hope I've posted this in the right section!
Becca
I have severe ME (have had it since I was 11, I'm now 25) but was also diagnosed with pots & ehlers danlos type 3 in 2011, I have recently been seeing an immunologist who has an interest in mast cell in Oxford (UK). I saw him yesterday regarding my results and he's discovered my immune system is apparently overactive, I am prone to recurrent tonsillitis and bladder infections (currently waiting to have a bladder biopsy as I have recently discovered my bladder is twice the normal size). He said my immune system needs boosting, I am not covered for tetanus, I had an allergic reaction to it when I was younger. I also became unwell after the meningitis c vaccine when I was 11. He suggested I go into hospital to have the following vaccines 'pneumovax II' and 'menitorix'. Basically I am concerned of the effect this will have on my ME and are there any papers to suggest vaccinations make ME worse? I am in limbo as to what to do as he says this will make my body produce antibodies which in turn will produce one of the things I'm very low in (I can't remember the name of it but he said there is no other way to boost it?). I'm in limbo - alongside this I am trialling high dose antihistamines for mast cell after my bladder biopsy, but with regards to the immune issues I don't know what to do.
Any help/advice would be great, I hope I've posted this in the right section!
Becca