slayadragon
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The other thing to consider here is that eventually, if we study the CCC patients, hopefully we are going to come up with biomarkers or other ways (such as the Alzheimer's testing) to figure out whether some of the people who are at a lower level of the illness actually do have the same disease.
This seems really important to me, since the vast majority of the people that I know with severe ME experienced a period of time prior to becoming really sick where they were affected by "mystery illness" but didn't yet meet the CCC.
And I would not put aside the idea that -- if toxins are involved -- some people may have the same basic condition as the CCC sufferers but manage (inadvertently or purposely) to avoid getting exposed to additional toxins to the extent that it would take to drive them deep into illness.
Whether there are 1 million people in the U.S. who currently have CCC ME/CFS, I don't know. We need more study.
But I would bet a good bit of money on the idea that there are a million people who either have CCC ME/CFS now; who have early symptoms now and eventually will end up with it; or who have early symptoms now and would end up with it if they made a few extra mistakes (like, say, moving into a really moldy house or getting a series of Hepatitis B vaccines).
Of course, I could be wrong. And until we study the CCC patients (preferably the severely affected ones) enough to be able to get a biomarker or a good test or a sensible conception of the illness, it's all going to remain a big mess.
This seems really important to me, since the vast majority of the people that I know with severe ME experienced a period of time prior to becoming really sick where they were affected by "mystery illness" but didn't yet meet the CCC.
And I would not put aside the idea that -- if toxins are involved -- some people may have the same basic condition as the CCC sufferers but manage (inadvertently or purposely) to avoid getting exposed to additional toxins to the extent that it would take to drive them deep into illness.
Whether there are 1 million people in the U.S. who currently have CCC ME/CFS, I don't know. We need more study.
But I would bet a good bit of money on the idea that there are a million people who either have CCC ME/CFS now; who have early symptoms now and eventually will end up with it; or who have early symptoms now and would end up with it if they made a few extra mistakes (like, say, moving into a really moldy house or getting a series of Hepatitis B vaccines).
Of course, I could be wrong. And until we study the CCC patients (preferably the severely affected ones) enough to be able to get a biomarker or a good test or a sensible conception of the illness, it's all going to remain a big mess.
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