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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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ADRA2A - an adrenergic receptor. That gene suppresses the release of norepinephrine (which I've repeatedly tested low in since getting sick), causes sustained hypotension, decreases GI motility, inhibits lipolysis, and causes dry mouth. Small studies have shown that ME/CFS patients have a three-fold up-regulation of ADRA2A following exertion (but not prior to it), compared to sedentary controls.
I haven't yet ... maybe I'll do that today.
) peddling while hooked up to a mask, cardiogram, blood pressure monitor, and pulse oximeter. I kept peddling til I couldn't do anymore, due to feeling like I couldn't breathe, then a few more minutes at a lower speed. By the time I got off I was in pretty bad shape, still couldn't catch my breath sitting in the chair, so sorta slid onto the floor til I was doing better. Yeah, tomorrow is crash-time He said it's actually easier to do IV antibiotics in the Netherlands than in Belgium, and there'll be no problem with me using the prescription for it here. And since it's several times per week for an extended period of time, that'll be a lot more convenient as well. Hell, the city hospital just moved to a new site that's a 5 minute drive or 10 minute scootmobile ride away
He said it's actually easier to do IV antibiotics in the Netherlands than in Belgium, and there'll be no problem with me using the prescription for it here. And since it's several times per week for an extended period of time, that'll be a lot more convenient as well. Hell, the city hospital just moved to a new site that's a 5 minute drive or 10 minute scootmobile ride away
I just got back from my first followup appointment. First there was an exercise stress test, which involved a lot of (shirtless!
Then I saw Dr Meirleir after waiting some more, and was informed that I have late stage Lyme. Apparently 50+ is positive, and I was at 700. I'll get full results in the mail in a week or so. The plan is 10 weeks of immune support, going back for another visit, and then IV antibiotics 3-4 times per weeks for several months.
just doesn't do the job.It was the LTT I think.
Wow, shirtless stress test, that deserves its own emoticon!
- Jaw dropping? - Perved out? - Grabby little hands or trying to shield himself from the sight?
Wow, shirtless stress test, that deserves its own emoticon!
Sushi
It was the LTT I think.
No idea yet about the immune support ... the info should arrive in the mail next week.
And I wasn't wearing a bra
Yeah, Jan got a show, as well as my fianceOh no!!!!!!!! and was it the male nurse?
I tested negative for all bands on a Western Blot. But apparently that's not too unusual in Stage 3 Lyme. I'm also not sure I trust the lab that ran the Western Blot, since they said my ESR was normal, even though every other lab has said my ESR is high in the past 3 years, including one from a sample taken just days earlier.
Are you sure it's a typo?maryb wins the typo award!!
maybe she made you a freudian slip to wear!Are you sure it's a typo?
...
And I wasn't wearing a bra
