More Demonstrations Being Planned in Washington D.C. for the week of Jan. 26th (2014)

[Wally]

Just wanted to give you a heads up that Wally is headed back to Washington D.C. for round two of "David and Goliath". I will be stopping by for a visit from Jan. 24th through Jan. 31st. This will be a rain, snow or shine appearance.
(See, 1) http://forums.phoenixrising.me/inde...-2013-and-washington-d-c-on-12-10-2013.26686/,
2) http://forums.phoenixrising.me/index.php?threads/david-and-goliath-—-or-the-sick-and-the-bureaucracy.26857/, 3) http://www.mecfsforums.com/index.php/topic,18501.0.html and 4) http://www.mecfsforums.com/index.php/topic,18602.0.html)

If you would like to participate in the upcoming demonstrations either in person or online, please contact Wally via this posting on the Phoenix Rising Forum, the posting on the MECFS Forum (http://www.mecfsforums.com/index.php ) or by e-mail at WallaceAlvinCleaver@gmail.com.

I definitely feel like the tide may be turning for the "outside voices" of ME/CFS patients to be heard in Washington and around the world.

Hang tough Canaries. I promise not to give up on this fight!

 

[justinreilly]

I would like to participate online. Thank you for doing this!

 

[Nielk]

I would like to participate online. Thank you for doing this!

How does participation online work?

 

[*GG*]

I would like to participate online. Thank you for doing this!

@Wally Me too, and perhaps in person. So you plan on doing something on a Sunday, right?

GG

PS Perhaps we can carpool?

 

[Wally]

@Wally Me too, and perhaps in person. So you plan on doing something on a Sunday, right?

GG

PS Perhaps we can carpool?

Yes, I will order a red Ferrari for our carpool.

 

[*GG*]

Yes, I will order a red Ferrari for our carpool.

Is a Ferrari even a 4 seater? But we could get there real fast!, doesn't sound practical?

GG

 

[Wally]

This is where duct tape comes in handy. We can just tape any extra riders on to the roof and the trunk.

 

[apogan]

For all who are planning to attend, God bless you and thank you for efforts. It means so much.

 

[Wally]

Here is a list of contacts for anyone who might be interested. Some additional editing will be needed, but I wanted to get these up this morning (1 minute) to spare. Additional information to follow later this afternoon explaining when and how you can help to get the word out about ME/CFS. For right now, this information is just provided for your review.

Contact List

1) How to contact elected officials in the U.S.? http://www.usa.gov/Contact/Elected.shtml and http://www.ifamericansknew.org/about_us/congress.html

2) How to contact to members of the U.S. House of Representatives? http://govsm.com/w/House

3) How to contact members of the U.S. Senate? http://govsm.com/w/Senate

4) How to contact the U.S. President (Barack Obama)? http://www.wikihow.com/Contact-the-President-of-the-United-States

5) How to contact the U.S. Vice President (Joe Biden)?
http://www.whitehouse.gov/administration/vice-president-biden and http://www.whitehouse.gov/contact

6) How to contact the U.S. Health and Human Services Department – Secretary Kathleen Sebelius? http://answers.usa.gov/system/templates/selfservice/USAGov/#!portal/1012/article/4599/United-States-Secretary-of-Health-and-Human-Services and https://twitter.com/HHSGov

7) How to contact the media? http://www.ifamericansknew.org/about_us/congress.html
and http://www.bitesizepr.com/how-to-contact-the-media/ and
http://www.acs.org/content/acs/en/v...s-of-media-outlets-and-how-to-reach-them.html

National Television News

ABC NEWS:
47 W. 66 St. New York, NY 10023
Phone: 212-456-7777
D.C. Bureau phone: 202-222-7777
General e-mail: netaudr@abc.com
http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
Facebook and Twitter – Check local ABC station affiliates for contact info.

ABC World News with Diane Sawyer:
Phone: 212-456-4040
Fax: 212-456-2795
E-mail: netaudr@abc.com
http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
Facebook and Twitter: https://www.facebook.com/WorldNews
and https://twitter.com/DianeSawyer

Nightline:
1717 DeSales St., NW, Washington, DC 20036
Phone: 202-222-7000
E-mail: niteline@abc.com
http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
Facebook and Twitter: https://www.facebook.com/nightline and https://twitter.com/Nightline

20/20:
147 Columbus Ave., 10th Floor, New York, NY 10023
Phone: 212-456-2020
Fax: 212-456-0533
E-mail: 2020@abc
http://abcnews.go.com/Site/page/contact-abcnewscom-3068843

ABC's Good Morning America:
147 Columbus Ave., New York, NY 10023
Phone: 212-456-5900
Fax: 212-456-7257
E-mail: netaudr@abc.com
http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
Facebook and Twitter: https://www.facebook.com/GoodMorningAmerica and https://twitter.com/GMA and https://twitter.com/RobinRoberts

CBS News
524 W. 57 St., New York, NY 10019
Phone: 212-975-4321
Fax: 212-975-1893
D.C. Bureau phone: 202-457-4385
http://www.cbsnews.com/htdocs/feedback/fb_news_form.shtml
Facebook and Twitter: https://www.facebook.com/CBSNews and https://twitter.com/CBSNews

CBS Evening News with Scott Pelley
524 West 57th St.
New York, NY 10019
Phone: 212-975-3691 or 202-457-4385
Fax: 212-975-1893
E-mail: http://www.cbsnews.com/htdocs/feedback/fb_news_form.shtml
Facebook and Twitter:

CBS This Morning:

Phone: 212-975-2824
Fax: 212-975-7133 or 212-975-2033
E-mail: http://www.cbs.com/feedback
Facebook and Twitter: https://www.facebook.com/CBSThisMorning
and https://twitter.com/CBSThisMorning

60 Minutes:
555 W. 57th St., New York, NY 10019-2985
Phone: 212-975-2006
Fax: 212-757-6975
E-mail: http://www.cbsnews.com/htdocs/feedback/fb_news_form.shtml
Facebook and Twitter:

Primetime:

E-mail:
Facebook and twitter: https://www.facebook.com/nightline and https://twitter.com/Nightline

CNBC: http://www.cbsnews.com/news/contact-information-509333
900 Sylvan Avenue
Englewood Cliffs, New Jersey 07632
Phone: (201) 735-2622
Fax: (201) 583-5453
Email: info@cnbc.com
https://register.cnbc.com/email/EmailSupport.jsp

CNN
One CNN Center, Box 105366, Atlanta, GA 30303-5366
Phone: 404-827-1500
Fax: 404-827-1906
E-mail: cnn.feedback@cnn.com
http://www.cnn.com/feedback/forms/form5.html?106
Facebook and Twitter:

CNN Washington Bureau
820 First St. N.E., Washington, DC 20002
Phone: 202-898-7900
Fax: 202-898-7923
E-mail: http://www.cnn.com/feedback/
Facebook and Twitter:

Crossfire

Phone: 202-898-7655
Fax: 202-898-7611
E-mail: http://www.cnn.com/feedback/
Facebook and Twitter:

Larry King Live

Phone: 202-898-7690
Fax: 202-898-7686
E-mail: http://www.cnn.com/feedback/
Facebook and Twitter:

Fox News Channel
1211 Ave. of the Americas
New York, NY 10036
Phone: (212) 301-3000
Fax: (212) 301-4229
Email: comments@foxnews.com
Facebook and Twitter:

MSNBC
One MSNBC Plaza
Secaucus, NJ 07094
Phone: (201) 583-5000
Fax: (201) 583-5453
Email: world@msnbc.com
Facebook and Twitter:

NBC
30 Rockefeller Plaza, New York, NY 10112
Phone: 212-664-4444
Fax: 212-664-4426
E-mail:
Facebook and Twitter:

Washington Bureau
4001 Nebraska Ave. NW, Washington, DC 20016
Phone: 202-885-4200
Fax: 202-362-2009
E-mail:
Facebook and Twitter:

NBC Nightly News with Brian Williams

Phone: 212-664-4971 or 202-885-4259
Fax: 202-362-2009
E-mail: nightly@nbc.com
http://www.nbcnews.com/id/29104230-nbc_nightly_news_with_brian_williams/#.Ut0qIbSIZLM
Facebook and Twitter:

NBC News' Today

Phone: 212-664-4602 or 202-885-4231
Fax: 212-664-4426
E-mail: today@nbc.com
http://www.today.com/id/29041920/ns/today/#.Ut0wQbSIZLM
Facebook and Twitter:

Dateline NBC

Phone: 212-664-7501
Fax: 212-664-7864
E-mail: dateline@nbc.com
http://www.nbcnews.com/id/10285339
Facebook and Twitter
________________________________________

Public Broadcasting

PBS
1320 Braddock Place, Alexandria, VA 22314
Phone: 703-739-5000
Fax: 703-739-8458
E-mail:
Facebook and Twitter

The News Hour with Jim Lehrer
3620 South 27th St., Arlington, VA 22206
Phone: 703-998-2150
E-mail: newshour@pbs.org
Facebook and Twitter:

National Public Radio
635 Massachusetts Ave. NW, Washington, DC 20001-3753
Phone: 202-513-2000
Fax: 202-513-3329
E-mail: Jeffrey Dvorkin, Ombudsman ombudsman@npr.org
Facebook and Twitter:

All Things Considered

Phone: 202-513-2110
E-mail: atc@npr.org
Facebook and Twitter

Morning Edition

Phone: 202-513-2150
Fax: 202-513-3329
E-mail: morning@npr.org
Facebook and Twitter:
________________________________________

National Newspapers

Los Angeles Times
202 West First Street, Los Angeles, CA 90012
Phone: 800-528-4637 or 213-237-5000
Fax: 213-237-4712
E-mail: letters@latimes.com
Facebook and Twitter:

New York Times
229 W. 43rd St., New York, NY 10036
Phone: 212-556-1234
Fax: 212-556-3690
D.C. Bureau phone: 202-862-0300
E-mail: letters@nytimes.com
Facebook and Twitter

USA Today
1000 Wilson Blvd., Arlington, VA 22229
Phone: 800-872-0001 or 703-276-3651
Fax: 703-247-3108
E-mail: editor@usatoday.com
Facebook and Twitter

Wall Street Journal
200 Liberty St., New York, NY 10281
Phone: 212-416-2000
Fax: 212-416-2658
E-mail: editors@interactive.wsj.com
Facebook and Twitter

Washington Post
1150 15th St., NW, Washington, DC 20071
Phone: 202-334-6000
Fax: 202-334-5269
E-mail: ombudsman@washpost.com
Facebook and Twitter

Associated Press
50 Rockefeller Plaza, New York, NY 10020
Phone: 212-621-1500
Fax: 212-621-7523
D.C. Bureau phone: 202-776-9400
Facebook and Twitter

San Francisco Chronicle
901 Mission St.
San Francisco, CA 94103
Local: (415) 777-1111
USA Toll Free: (866) 732-4766
E-mail: metro@sfchronicle.com
Facebook and Twitter:


________________________________________

Magazines

Newsweek
251 W 57th Street, New York, NY 10019
Phone: 212-445-4000
Fax: 212-445-5068
E-mail: letters@newsweek.com
Facebook and Twitter

Time
Time & Life Bldg., Rockefeller Center, New York, NY 10020
Phone: 212-522-1212
Fax: 212-522-0323
E-mail: letters@time.com

U.S. News & World Report
1050 Thomas Jefferson St., Washington, DC 20007
Phone: 202-955-2000
Fax: 202-955-2049
E-mail: letters@usnews.com

 

[Little Bluestem]

Wow! That is an impressive contact list. Maybe it should be put into a separate thread and pinned in the Advocacy Forum.

 

[Wally]

Hi! Just checking back in on this thread to let you know that work is still in progress getting ducks canaries in a row for all the activities happening this week in D.C. Working hard on the preparations. Does anyone know if there is a "Demonstrations R Us" here in D.C."??? Lots of last minute details to work through. The is always in the details.

I have been sequestered in my hotel room since Friday evening working away on preparations for events happening this week in D.C. - i.e. demonstrations, IOM meeting and lobbying Congress. There are many patients and patient advocates working quietly and diligently behind the scenes. If other patients and/or their supporters would like to lend a helping hand to keep the ball rolling to try to get this illness a spot front and center on the national news stage (and hopefully international stage) your support would be very welcome and appreciated. Full instructions on how you can help in this effort will be published later today (1/26 - EST) on this and other ME, ME/CFS and CFS Forums, Websites and Facebook pages.

Sure hoping everyone will be rested up because Monday is going to be a very busy day.

 

[Wally]

Hi! Just checking back in on this thread to let you know that work is still in progress getting ducks canaries in a row for all the activities happening this week in D.C. Working hard on the preparations. Does anyone know if there is a "Demonstrations R Us" here in D.C."??? Lots of last minute details to work through. The is always in the details.

I have been sequestered in my hotel room since Friday evening working away on preparations for events happening this week in D.C. - i.e. demonstrations, IOM meeting and lobbying Congress. There are many patients and patient advocates working quietly and diligently behind the scenes. If other patients and/or their supporters would like to lend a helping hand to keep the ball rolling to try to get this illness a spot front and center on the national news stage (and hopefully international stage) your support would be very welcome and appreciated. Full instructions on how you can help in this effort will be published later today (1/26 - EST) on this and other ME, ME/CFS and CFS Forums, Websites and Facebook pages.

Sure hoping everyone will be rested up because Monday is going to be a very busy day.

Yes. It is now past the witching hour that I said I would be posting and I still have a few more things to tweak. Busy, busy day with some additional plates added to the performance tomorrow. But is all good, we just wish we could clone about 100 more bodies with fully functioning brains and motor skills.

What you will be asked to do in a few hours when the sun comes up over D.C. Is to consider sending out an e-mail, a fax, a tweet or a Facebook post to let the world hear your voice and show that we are not invisible. We are real people with a real illness and we need help from the public, our medical communities and our governments to recognize ME/CFS as a Neuro Endocrine Immune Disorder /Disease that needs the workd's attention and support to help solve this illness.

Rest now my canaries - in a few hours the gates will open and you will be able to participate in our virtual demonstration. We had planned to be able to stream "live" the demonstration(s) that will happen in D.C. tomorrow before the ME/CFS - IOM meeting. But we have run into some technical difficulties with getting a live stream up and functional, but we will let you know as soon as we can if this will be an option for you to join in on. Even if a live feed is not possible in the morning, the demonstrations will be captured on film for patients to view. We will also be working to set up a platform, such as google chat, so the patient community can come share how their day of advocacy took flight.

Good night for now. Talk to you again in a few hours.

 

[roxie60]

Wow this sounds wonderful. Just saw this thread. So many voices being ignored, mental health, CFS/ME, Lyme and so many others.....have to be loud and make them hear, we need to ROAR....good luck with eveything today and thanks for what you are doing.

 

[Wally]

PR Forum members - I know that a lot of you may be watching the IOM meeting right now, but I wanted to try to post something as soon as I was able to. I apologize for not communicating prior to now, but I have not had Internet access since last night due to a problem with wi-fi connection at the hotel where I am staying and I after a long night trying to figure out what happened it appears that my computer was infected with a virus.

I have been able to get some sporadic connection on another mobile device and tried to get an earlier message up on the Forum, but I was kicked off several times and then needed to travel to the IOM meeting here in D.C. I am here at the meeting now and stepped outside to send this message once my backup mobile device was charged.
It has been a rough day made a little worse by the frustrations of dealing with technology that is not as reliable as one would expect.

Thanks for your understanding in why Wally disappeared from the planned on-line virtual demonstrations. Perhaps a rescheduling of this event can occur at a later date when all the unplanned technological setbacks have been addressed.

Headed back into the meeting right now.

 

[knackers323]

Thanks for all your effort wally