xchocoholic
Senior Member
- Messages
- 2,947
- Location
- Florida
I'm sure many of you are running into this too.
I'm physically and mentally fatigued most of the time so I sound whiney even tho I'm not aware of it. It has to do with having little energy and strength in my body. I suspect weak lungs, OI and chronic low blood sugar aren't helping.
People treat me differently based on what they perceive. Some are kind and helpful especially if I'm in a motorized cart.
Some treat me like I need to get out of their way whether I'm in a cart or not.
And some, friends and family mostly, talk to me like I was a child by explaining simple things to me. I'm 58 so that's really annoying.
So I'm good with the ones being kind but recently learned that sometimes that kind voice is really condescension. Sometimes these people think I'm stupid because I don't have the energy to constantly argue with them. You know the type.
FWIW, I'm not sure how I'd perceive a pwc if I didn't have this myself. I was always kind to people but would imagine after a few years of trying to have a conversation with me (pwc) I'd give up too. I can only imagine how cfs doctors cope with this.
Being pwcs we understand how our minds can be tired but that doesn't mean we've lost our abilities to learn or express ourselves completely. We're just trapped in these weak bodies.
Anyone else frustrated with being treated like someone you're not ?
I'm physically and mentally fatigued most of the time so I sound whiney even tho I'm not aware of it. It has to do with having little energy and strength in my body. I suspect weak lungs, OI and chronic low blood sugar aren't helping.
People treat me differently based on what they perceive. Some are kind and helpful especially if I'm in a motorized cart.
Some treat me like I need to get out of their way whether I'm in a cart or not.
And some, friends and family mostly, talk to me like I was a child by explaining simple things to me. I'm 58 so that's really annoying.
So I'm good with the ones being kind but recently learned that sometimes that kind voice is really condescension. Sometimes these people think I'm stupid because I don't have the energy to constantly argue with them. You know the type.
FWIW, I'm not sure how I'd perceive a pwc if I didn't have this myself. I was always kind to people but would imagine after a few years of trying to have a conversation with me (pwc) I'd give up too. I can only imagine how cfs doctors cope with this.
Being pwcs we understand how our minds can be tired but that doesn't mean we've lost our abilities to learn or express ourselves completely. We're just trapped in these weak bodies.
Anyone else frustrated with being treated like someone you're not ?