aimossy
Senior Member
- Messages
- 1,106
I am learning slowly this area is quite overwhelming in how to tackle.
The gut and food stuff is like a Rubics' cube to me.
I have ME and I have been to bucket loads of specialists I think I have seen about four Gastro specialists in our public health system over the years. I have tried quite a few things and probiotics(bad idea for me not fun) and FODMAPS (but not a full fodmaps the dietician new less than me and it equalled a gut that became too slow to tolerate) its like you learn from mistakes and if I did that again I would have to do take serious fibre which I usually can not tolerate.
I am gluten free and lacto free but the gut has still got worse and worse over time. I decided to go to a gastro privately again and researched the specialists we have.......this time I was in for a surprise!
Along with EBV , toxoplasmosis, Atypical pneumonia (is that mycoplasma?) that seemed to have been all trigger possibilities in my case I also got campylobacter.
Um yeah it seems this was over a period of about 2yrs my immune system got a hammering. HELLO ME.
The specialist was very good and respectful and sincere and listened an not dismissive in the least.
He wants me to have 3 breath tests and check for SIBO. I had no idea this was even available here, I was quite surprised so I have been reading about SIBO now. He is thinking post infectious IBS from the campylobacter.
Im still thinking ME
There seems to be the theory that some of the diets like SCD GAPS and Paleo and FODMAPS can help because they are helping SIBO.....of course you can have specific intolerances as well. I don't know if this is true of course......is this the same as leaky gut? Im wondering what others make of this?
Geeeze I am going to be on a slow mission with this. I don't know if the info im gaining is correct.
I don't know the specifics of the 3 breath tests except given solutions etc and checked for gasses in the breath.
I guess that they will check for lactose and fructose intolerance.
How accurate is the testing? Is there a diet specific to SIBO? I understand that dealing with it can take up to 2 years.
Am I on the right track im wondering?
Im wondering how its been for others who have had the breath tests and SIBO thing and how all these diets fit and Im wondering about leaky gut and I think Im wondering too much about about this Rubics' cube
Aim
The gut and food stuff is like a Rubics' cube to me.
I have ME and I have been to bucket loads of specialists I think I have seen about four Gastro specialists in our public health system over the years. I have tried quite a few things and probiotics(bad idea for me not fun) and FODMAPS (but not a full fodmaps the dietician new less than me and it equalled a gut that became too slow to tolerate) its like you learn from mistakes and if I did that again I would have to do take serious fibre which I usually can not tolerate.
I am gluten free and lacto free but the gut has still got worse and worse over time. I decided to go to a gastro privately again and researched the specialists we have.......this time I was in for a surprise!
Along with EBV , toxoplasmosis, Atypical pneumonia (is that mycoplasma?) that seemed to have been all trigger possibilities in my case I also got campylobacter.
Um yeah it seems this was over a period of about 2yrs my immune system got a hammering. HELLO ME.
The specialist was very good and respectful and sincere and listened an not dismissive in the least.
He wants me to have 3 breath tests and check for SIBO. I had no idea this was even available here, I was quite surprised so I have been reading about SIBO now. He is thinking post infectious IBS from the campylobacter.
Im still thinking ME
There seems to be the theory that some of the diets like SCD GAPS and Paleo and FODMAPS can help because they are helping SIBO.....of course you can have specific intolerances as well. I don't know if this is true of course......is this the same as leaky gut? Im wondering what others make of this?
Geeeze I am going to be on a slow mission with this. I don't know if the info im gaining is correct.
I don't know the specifics of the 3 breath tests except given solutions etc and checked for gasses in the breath.
I guess that they will check for lactose and fructose intolerance.
How accurate is the testing? Is there a diet specific to SIBO? I understand that dealing with it can take up to 2 years.
Am I on the right track im wondering?
Im wondering how its been for others who have had the breath tests and SIBO thing and how all these diets fit and Im wondering about leaky gut and I think Im wondering too much about about this Rubics' cube
Aim