Nielk
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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CFSAC meeting, Dec 10-11 - Agenda
- Thread starter Nielk
- Start date
shannah
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I see Nancy Lee has a half hour up front to address the IOM study on ME.
Andrew
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- Los Angeles, USA
Does anyone know how we can sign up for the comment segment?
Ember
Senior Member
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That should be long enough to explain why the contract was cancelled.
Nielk
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They didn't tell us yet. they usually send out a listserv e-mail with the information.
Nielk
Senior Member
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I also see, though, that there is no time allotted to a discussion of the IOM contract. I'm sure the voting CFSAC members have a lot to say about it but, I don't see when they can do so. Will there be a gag on such discussions?
Andrew
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I might have asked this before, but...
How do web-a-thingies work. If we want to testify, how will we be able to speak? Do we use our computer microphone?
How do web-a-thingies work. If we want to testify, how will we be able to speak? Do we use our computer microphone?
Nielk
Senior Member
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- 6,970
They are supposed to come out with a Q&A of how all this is going to work out but, I have not seen it yet.