I just went to an LLMD for the first time, want to get the more sophisticated Lyme and other pathogen testing. He told me that they are finding 80% of people with CFS are testing positive for Lyme using labs like IgeneX.
I am very worried because I think in a corner of my mind that these LLMDs, who don't take insurance and are very expensive, are pushing people to turn up Lyme positive to make $$$$ by using labs that might be good but seem to have such a low stringency for what is positive that almost everyone is positive.
I tested negative twice using the CDC two-tiered test from Quest, but it's very difficult to know by symptoms because the symptoms between CFS and Lyme are the same.
Has anyone done the IgeneX test and turned up negative?
I am very worried because I think in a corner of my mind that these LLMDs, who don't take insurance and are very expensive, are pushing people to turn up Lyme positive to make $$$$ by using labs that might be good but seem to have such a low stringency for what is positive that almost everyone is positive.
I tested negative twice using the CDC two-tiered test from Quest, but it's very difficult to know by symptoms because the symptoms between CFS and Lyme are the same.
Has anyone done the IgeneX test and turned up negative?