readyforlife
Senior Member
- Messages
- 137
Are you aware we are fighting for our lives? IOM panel Death Panel, is going to change everything if not stopped.
I use to only go on the Phoenix Rising forums to read and respond to the symptom and treatments section.
I’ve never even looked at the ADVOCACY AND FUNDRAISING section. I’ve never been involved in ADVOCACY or really understood the importance of it.
I would go to the forums SYMPTOM AND TREATMENT section daily looking for the magic pill or answer. But the truth is we don’t have a treatment that will cure us.
I have spent over $10,000 dollars over the years trying everything to get better. Nothing works or it works for awhile and than stops.
The answer to a cure isn’t in the symptom and treatment section it’s in ADVOCACY.
With out your participation we are all going to die with out treatment or a cure.
This is a post from a PR member and I couldn’t agree more. I use to be one of the 230 people posting about treatments. I know his tone is aggressive but we are getting frustrated with the lack of interest or participation within our community.
The lack of Critical Mass and the tepid response from this community is disheartening. This is a life and death issue for patients. This will determine your care for the rest of their life! We have 230 people signing on PR at any one time and most of you are posting about treatments or complaining about your illnesses.
So I have become disheartened and I'm disengaging from this cause. I cannot help people that are unwilling to help themselves! I know that most are sick but if you can post on here about treatment options or complain about your symptoms, than you certainly can make a posts to support or discuss this issue and to raise awareness in other social media circles! The postings must be continue until this issue is resolved in our favor! Your life and treatment is dependent on this issue.
Come over and get involved with ADVOCAY and help save yourself.
Readyforlife
I use to only go on the Phoenix Rising forums to read and respond to the symptom and treatments section.
I’ve never even looked at the ADVOCACY AND FUNDRAISING section. I’ve never been involved in ADVOCACY or really understood the importance of it.
I would go to the forums SYMPTOM AND TREATMENT section daily looking for the magic pill or answer. But the truth is we don’t have a treatment that will cure us.
I have spent over $10,000 dollars over the years trying everything to get better. Nothing works or it works for awhile and than stops.
The answer to a cure isn’t in the symptom and treatment section it’s in ADVOCACY.
With out your participation we are all going to die with out treatment or a cure.
This is a post from a PR member and I couldn’t agree more. I use to be one of the 230 people posting about treatments. I know his tone is aggressive but we are getting frustrated with the lack of interest or participation within our community.
The lack of Critical Mass and the tepid response from this community is disheartening. This is a life and death issue for patients. This will determine your care for the rest of their life! We have 230 people signing on PR at any one time and most of you are posting about treatments or complaining about your illnesses.
So I have become disheartened and I'm disengaging from this cause. I cannot help people that are unwilling to help themselves! I know that most are sick but if you can post on here about treatment options or complain about your symptoms, than you certainly can make a posts to support or discuss this issue and to raise awareness in other social media circles! The postings must be continue until this issue is resolved in our favor! Your life and treatment is dependent on this issue.
Come over and get involved with ADVOCAY and help save yourself.
Readyforlife