Firestormm
Senior Member
- Messages
- 5,055
- Location
- Cornwall England
I just wanted to start a thread where I can keep us all up to speed with the ongoing advocacy and research that is being performed by Professor Julia Newton and her team 'up' in Newcastle.
You can of course follow developments - as I do - by 'liking' their Facebook page, here.
You can of course follow developments - as I do - by 'liking' their Facebook page, here.
26 September 2013
"We had a research meeting last week where our friends from Northumbria University presented the results of our ongoing studies.
We are now having these Faculty meetings every month and have applied to the university for status as a University Research Centre.
We went to Southampton last week to talk to the Neurosciences Group which was a great meeting and a number of possible collaborations have come from that.
Next week off to BACME to talk about 'managing autonomic problems: translating research into clinical practise'.
The week after its a talk to the Sunderland patient group (they are interested in our rituximab trial for fatigue in PBC and whether it might apply to ME) and then we have a visit from Action for ME to Newcastle (to see the work we are doing) and in the same week we are talking at the Action for ME AGM.
Then the most scary talk is the Minimedical School where we are talking to sixth formers interested in applying for medical school - 500 have registered for the session that Jason and Julia are doing.
Busy busy busy ....
These opportunities to talk about how terrible the disease ME is, and how it destroys lives, and how research can change our understanding and management of the disease are valuable - as they allow us to change perception and if it improves the experience of patients when they see doctors and empowers sufferers - then its an important part of our work."