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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Aviva! Your vote can help fund a year of ME/FM awareness in Canada!

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It will cost you nothing more than an online vote to help see the National ME/FM Action Network enter the second round of the Aviva community competition to win $100,000. Voting in this round closes 14th October and you can vote every single day until then - so please join us and cast your vote now! By Firestormm.

Join us in sending the National ME/FM Action Network of Canada through to the second round of the Aviva Community Fund competition so that they can win $100,000 to be used to help raise awareness on 12th May 2014.​

This is the first of three qualifying rounds of the online competition. At the time of writing we have 12 days left until all the votes are totted up and the National ME/FM Action Network will move hopefully a little closer to winning $100,000.

Voting is so darned simple even I could do it!

Go here to register.

Click the button, Vote Now.

Complete the simple voting registration form (the one on the left) with your email address and provide a password.

Or, you can vote via your Facebook account (the blue button above), and simply skip the permission request to access your profile etc.

You only need to register the first time and you don't need a Facebook account to vote in this competition.

You can vote every single day (using the same link will redirect you to the right place - or click the pictures above and below which are also linked to the voting page) and you can ask to be reminded to vote automatically.

Voting for the first round ends on 14th October at which time we'll aim to publish another article when they are successfully through to the next round.

But your support is needed. So please help give a fighting chance for the National ME/FM Action Network of Canada to win $100,000 so that they can ensure May 12th 2014 begins a spectacular year for raising awareness of our disease and bringing much needed attention to those like us who are most affected by it.

The Action Network has already made it into the top ten in its size category of this round and if it maintains that position and is then able to repeat its performance in subsequent qualifying rounds, it will go through to the semi-finals in December. All finalists in each round win $5,000. The leaderboard can be found here.

Please consider sharing this article on your own Facebook page to help bring greater awareness to the competition. Use our share link (the green pop-out located on our Home page version of this article), to 'like' on Facebook, to 'tweet' or to recommend the article on other applications.

The National ME/FM Action Network of Canada

The Action Network's contest statement is as follows:

Our dream begins with awareness. May 12th Awareness Day is a chance for the 750,000 people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM) to be seen and heard! These illnesses are real; the people are real; and they need help NOW!

ME/CFS and FM are chronic and severely disabling illnesses. They are as disabling as MS and are more prevalent in Canada than breast cancer, MS and AIDS combined! People are frequently bedridden and become isolated from friends and family – invisible in their own communities.

Dr Nancy Klimas, an expert in both ME/CFS and AIDS, was quoted as saying “A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS. If I had to choose between the two illnesses I would rather have H.I.V.

These illnesses do not discriminate. All races, men and women, rich and poor, adults and children can be afflicted. It is devastating when a child is forced to cope with such a disabling illness.
We are on a mission to bring awareness in Canada for this community of people living with these illnesses and to set the stage for fundraising for research and more physician education. To date our volunteer efforts have been handcuffed as not only is our community very disabled, many are in financial distress. The illness limits our ability to raise the substantial amounts required to mount a large scale awareness event and to fund the desperately needed research. It is the dream of our community to erase stigma and finally be taken seriously by friends, family, researchers, government and those in our local communities.

This contest gives us a chance to fund a nation wide awareness campaign for 2014, the 22nd Anniversary of May 12th Awareness Day. It will also define Canada as a world leader in raising awareness as this day is also an international event. It will not only benefit 750,000 Canadians, but it will indirectly benefit the 20 million people that suffer worldwide.

We will use the funds to hold events in as many communities across Canada as possible which will lay the foundation for a strong network of organizations in Canada and future fund raising for education and research. We’ll connect with every MP and provincial/territorial representative in Canada and have May 12th proclaimed in cities nationwide. We’ll sport t-shirts, carry signs and have engaging speakers in as many communities as possible. Each event will have its own venue but will share elements common to all. In order to unite the larger community across Canada we’ll also advertise in national and local papers, and, if funding permits, on TV and radio. As education is so critical, we will also target physicians, medical students and other health professionals with our letters and/or advertising. Brochures and a white board medicine video are planned.

We believe with awareness, will come action! Our community is desperately in need of treatment facilities and funding is required to support research and our scientists. A successful May 12th will bring many rewards for years to come. These activities will not only benefit us today, but they will be an investment in our future.

Aviva’s gift will help to unite our national and local communities and make a difference to the lives of many Canadians. It will give us credibility in our quest for treatment and a cure and hope for a better tomorrow.

To quote Helen Keller – “Alone we can do so little; together we can do so much.”

View the Post on the Blog
 
I mean I know dogs are cool and everything, but when compared to helping people with ME, there really is a need to prioritize! See the Leader Board

Only 10 days left to go in this round... Imagine how much awareness can be raised with $100,000... A strong awareness campaign in Canada next year WILL have positive impact around the world!

Please share the main article with instructions on your Facebook pages and let's keep voting!! :)
 
I communicated with Mark (admin) about sending out an email to PR subscribers - we did it already for many contests in the past and it always helped to bring many votes. He agreed but unluckily he has holidays now. He said that he will try to manage it but it´s not sure.
Is here maybe another admin who could do it?

Anyway I dont know where is mistake with this contest but we are getting only something more than 200 daily votes. It´s far behind what we were able in the past, which was around 1 000 daily votes. We are sleeping somehow so if you are able to do some more efforts, just do it - we need money for our organisations. Contact your support groups, friends, family members,... I have good experiences if I am on facebook and I see there a friend on-line - I do a small chat with him and I ask him to vote - noone refused. But if you only send an email to your friends - only few will vote, which is of course also good - we need every vote.
 
I communicated with Mark (admin) about sending out an email to PR subscribers - we did it already for many contests in the past and it always helped to bring many votes. He agreed but unluckily he has holidays now. He said that he will try to manage it but it´s not sure.
Is here maybe another admin who could do it?

Anyway I dont know where is mistake with this contest but we are getting only something more than 200 daily votes. It´s far behind what we were able in the past, which was around 1 000 daily votes. We are sleeping somehow so if you are able to do some more efforts, just do it - we need money for our organisations. Contact your support groups, friends, family members,... I have good experiences if I am on facebook and I see there a friend on-line - I do a small chat with him and I ask him to vote - noone refused. But if you only send an email to your friends - only few will vote, which is of course also good - we need every vote.

I am seeing what can be done. I know the newsletter went out the other day and I think it contained this article; but if we can follow-up with a specific email then we will.

Yeah I don't know why people aren't voting. It's so easy to do. Doesn't cost anything, and there's nothing else around at the moment. So no distractions - well apart from the HHS stuff - but that shouldn't stop people from doing this!

I'll get back to you :)
 
Aviva! Your vote can help fund a year of ME/FM awareness in Canada!
Join us in sending the National ME/FM Action Network of Canada through to the second round of the Aviva Community Fund competition so that they can win $100,000 to be used to help raise awareness on 12th May 2014.
This is the first of three qualifying rounds of the online competition. At the time of writing we have 9 days left until all the votes are totted up and the National ME/FM Action Network will move hopefully a little closer to winning $100,000.

You do not need to be resident in Canada to vote, but your vote can help to ensure that one of the more proactive organisations in the world is better able to raise effective awareness of our disease beginning on international awareness day 2014.

Remember Niagara Falls being turned blue? That was the May 12th initiative from the National ME/FM Action Network of Canada, and they have similar plans for next year, if we can all come together and help keep them in this competition.

Voting is simple. Our Phoenix Rising article tells you all you need to know. You can initially register and then place a vote each and every day, at the click of a button, for as long as the Action Network remains in the competition.

The Action Network are currently in 10th position and we really need to keep them inside the top 10 in order that they might qualify.

Please join with thousands of others from around the world and help raise awareness of your disease!

Tuha We sent the above email to our 3,000 + subscribers. Hopefully, that might get people voting :balloons:

A tweety-bird told me you might be planning to light Niagara up again as well as other monuments in Canada.

A most excellent notion :)