Glands!

[Fuzzyhead]

Does anyone have glands that are always up? I have a gland in the left side of my neck and behind my left ear that are always big. They did go down a few years ago for about 18 months and I felt a lot better but they have gone up again and I am currently unwell, I don't know if it's linked.
I saw dr Perrin for 2 years who does the lymphatic drainage so I don't know if that's why they went down and because I haven't went for the last year or so my toxins have built up again.

 

[justy]

I have one on the back of my neck, just below skull. Mine goes up an down throughout the day - up in the morning and evening usually and then up but lower in the day - been like this for 4 years. A couple of months ago it went right down for a week and i felt almost better, butit soon came back, and so did the feeling ill. The ones behind my ears come up and down as well.

When i questioned my doctor he said 'w're not interested in THOSE glands'

Nice.

All the best, Justy.

 

[Fuzzyhead]

It's weird isn't it that we both say when they went down we felt better? It's like our bodies are constantly fighting something.

 

[merylg]

Consider Ehlers-Danlos Vascular Type, which can overlap with other EDS types, and other connective tissue disorders. Consider those disorders as well eg Loeys-Dietz Syndrome & Marfan Syndrome...(see Dr at a genetic clinic)
Consider infections & consider Vasculitis eg Behcet's Disease, including Lupus-like Behcet's presentation...(see Infectious Diseases specialist, Immunologist, Rheumatologist, Gastroenterologist, Opthalmologist etc)
Rule out cancers/leukaemias/lymphomas etc.

 

[Fuzzyhead]

It's not going to be cancer, lymphomas or leukemias because I had m.e for 12 yrs and the glands have been up and down since then.
I am seeing an immunologist next month.

 

[Christmas]

Hi I have swollen glands alot - had Glandular Fever - 20 years ago. Lots of Orange Juice seems to really help me - takes a couple of days to work but all of a sudden my glands go down - I have experimented a lot and found this works for me.

 

[Fuzzyhead]

I had glandular fever too when I was about 18 and I am 43 now so about 25 yrs ago.

 

[doggo]

My main symptom of ME is a near constant feeling of never quite
recovering from flu, in that I usually have a muzzy head and swollen glands in
my neck.

A few weeks ago I had a cold. As I was recovering I woke up one morning
with a clear head, which is most unusual for me. This wonderful feeling lasted
for about two hours, until I returned to my normal state.
I have had this happen from time to time after a cold.

Is this brief relief after a cold something that many ME sufferers experience?
If so, is it an indication of some treatment which might be helpful, or some
line of research to be followed?

 

[Valentijn]

Is this brief relief after a cold something that many ME sufferers experience?

I definitely feel a bit better with regards to ME symptoms when I have a "normal" infection. Though after the first month or so of my sinus infection (I'm now on month 4), I started feeling crappier again, with both ME and sinus infection symptoms.