These are mine so far to help improve symptoms:
Grounding
Meditation
Deep belly breathing exercises
Going for a jog or walk.
These are all effective are but as you probably know from experience, as soon as you stand up the symptoms come back again. I would love to know any experienced POTTERS ideas.
Best wishes
Jamie
Unfortunately none of those help my POTS at all. I did regular exercise for a couple of months back when I was a bit more able as a doctor said toning my leg muscles etc woud help unfortunately it didnt at all, the POTS still was just as bad. This is the common case for those of us who have ME. If things like meditation help your POTS, it sounds like your issues are more stress induced.
The normal common POTS things used to treat it help me some (except that exercise which is often recommended to people) . My POTS thou is still very very bad, only about 45% controlled with all the things below (so I still get a lot of collapses with it)
- Florinef
- Clonidine
- medical support stockings (I wear to top of legs)
- Taking care not to do mutiple POTS triggering things at once eg eating (which is a POTS trigger) in a too warm room .
- Avoidance of POTS triggers as much as possible (to help prevent collapsing) eg avoiding raising both arms above my head or standing in a quene.
- Fluid loading (I also take a lot of salt but the salt doesnt seem to do much for me, constantly drinking (sipping) thou helps
Im currently wanting to trial saline IVs for my POTS due to all the issues I have with it. eg I had two collapses with it last Tuesday while shopping, I only just made it into the shopping centre door before I collapsed (that was with also using a Disaiblity park outside so didnt have far to walk).