If you google cfs leaky gut, cfs gluten, cfs lyme, cfs candida, cfs mold, etc etc, you'll find these subgroups have been around
for a long time. I found it in 2005 when I first logged onto the web and started researching my cfs but I don't
know how long the info has been available to medical professionals.
I'm seeing that some pwcs heal via treating their other dx but some don't. Genes, environment, finances, etc can
be contributing factors for why some don't heal, but also the fact that these root causes haven't been fully researched plays a role. From what I've seen even celiacs, ie gut damage, aren't tested for nutritional deficiencies, parasites, bad bacteria, etc.
The only
reason I started reasearching cfs, leaky gut, etc is that my GP explained food intolerances to me and gave me a handout
on how these can cause a multitude of symptoms. It was called the leap program and she'd been using it for
years on other patients so she knew it could help. I didn't hear about it until I'd seen a gastroenterologist
for months who was clueless and I couldn't stop losing weight. I was a size 2 by then and everything
I ate was going right thru me.
That wasn't until 15 1/2 years after becoming disabled with cfs.
Granted my cfs specialist had recommended the elimination diet in 1992 but I didn't see any difference
so I gave up on that. I'd already spent $2500 on a naturopath who used a machine to tell him what foods
I was sensitive to and that didn't work so I was leary of the food angle. Duh ! I really missed an opportunity
there.
For me, and many others, the puzzle peice missing at that time was to eliminate gluten, not just wheat. My GP made that
same mistake in 2005. That info was on the web thanks to patients.
I see an integrative doctor and would love to know what that group has found. They look for root causes.
Based on my experience Medicare should have a great data base on this. That could save time
and money on determining subsets.
Tc .. X