Normal NK Function

[WillowJ]

I don't know Heapsreal - it's this http://www.questdiagnostics.com/testcenter/BUOrderInfo.action?tc=34184&labCode=SEA. CFS Dr. ordered it from there so I assume it's looking at the right thing. Yes, I've tested positive for EBV and HHV6.

to me the lab norms seem like some low values are marked as normal (I have seen lab norms at 5-8, but I have heard a doc say it should be more like 20 LU30 to be in good range). what did your CFS doc say?

 

[heapsreal]

different lab measurements depend on the units they are measuring them in which can be different between different labs. 13-34 were the lab norms when i got tested in the cfs nk study. i was tested every 6 months heres my readings 33(after my first 12 months on famvir and was functioning at a good level), 6, 51(when on cycloferon), 1 and 2. Like i mentioned before they also measured nk bright cell function which was 4.32, 1, 1.95, .93, and 1, the normal ranges were 5-10. The dim cell readings were all in the normal range. This testing was done in a research study so i guess its not commonly available as say the nk function testing. In australia any nk function testing isnt available outside of research study?? In the US its obviously different.

 

[LiveAgain]

Willow, CSF Doctor said she still thinks my NK function is low. Based on what - I don't know. Maybe it's like you said and the lab gives a lower reference range than what CFS Doctors consider normal. I wish I knew when all the CFS researchers and Doctors keep talking about low NK Function as a bio-marker what standard they are using. What lab, what specific test, what numbers are considered low etc. Do you remember which Doctor said that?

 

[WillowJ]

Willow, CSF Doctor said she still thinks my NK function is low. Based on what - I don't know. Maybe it's like you said and the lab gives a lower reference range than what CFS Doctors consider normal. I wish I knew when all the CFS researchers and Doctors keep talking about low NK Function as a bio-marker what standard they are using. What lab, what specific test, what numbers are considered low etc.

the ME/CFS researchers are generally talking about a research test which cannot be obtained commercially (althouth this is not a recent finding; not sure what they were using previously). some of the big-name ME/CFS researchers in the US will ship bloods to Florida for Fletcher and Klimas to test with their protocol.

This is what they are doing currently:
http://www.ncbi.nlm.nih.gov/pubmed/22571715 (PHANU, Australia; this team has moved to Griffith U)
http://www.ncbi.nlm.nih.gov/pubmed/20520837 (Institue for NeuroImmune Medicine, Florida, USA; this team has moved to Nova Southeastern U)

 

[LiveAgain]

Thank you, Willow! So Quest's test may not be exactly the same as the research test. It's hard to sit around waiting for research when you've been sick so long and want answers NOW. Patience, patience...