Firestormm
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23 June 2013 Daily Telegraph Health
Emily didn’t 'only’ have ME
Emily Collingbridge fought valiantly to publicise the extreme form of ME from which she died
By Naomi Whittingham
Exactly a month ago today, an inquest ruled that Emily Collingridge, an ME (myalgic encephalomyelitis) sufferer, died from the side-effects of prescription drugs she was taking to alleviate her terrible pain.
Emily had an extreme form of ME, one that is little recognised by doctors and arguably neglected in the NHS. But her death in March last year, aged 30, highlights the grim reality for those afflicted by it.
Like me, Emily had suffered from ME since childhood and we were friends for many years. We were never well enough to meet, but built a strong bond through texts, emails and letters. Her small relief from her living hell was her BlackBerry. With hands twisted by spasms and eyes that struggled to focus, she painfully typed out messages to others with ME. She worked hard to improve understanding of ME and was the author of a highly acclaimed book for those severely affected.
Click Here to read the rest of the article.
Emily Collingridge’s book, 'Severe ME/CFS: A Guide to Living’, can be bought at severeme.info
Firestormm - I didn't realise this was online and that we could click through to show them the traffic, and comment, 'like' it, etc. - would you mind editing your first post to mention that? I didn't realise the headline you've provided was clickable. Might even be an idea just to give the first few paras to force people to the Telegraph site to read it - up to you! But I think the more traffic and reaction they get to this kind of thing, the more they'll do it.