If this is a protocol for all of these groups
It's not, it's for PWME (ME/CFS) e.g. as outlined in the introduction in the hypothesis article
And if you really think all of those definitions are the same
Not what I said, note the word "
further"
What sorts of pain have you experienced?
I've been lucky in that the only acute pain I've had related to very rare migraines, sporadic sharp chest pains, somewhat seasonal periods of (mostly morning) headaches and the only persistent chronic pain was/is low grade myalgia mostly limited to the upper back. Have also had more general persistent broader muscular and abdominal ‘discomfort’ (wouldn’t call either ‘pain’ as such)
Can you describe your PEM triggers and symptoms
I used to tolerate exercise fairly well, relatively speaking – I would exercise sporadically and just feel like I’d been hit by a train for a day or so and then have achey muscles for a day or so, with somewhat depressed energy levels throughout
Since my latest relapse, and commencing Perrin Technique manual lymphatic drainage, having had a break from sport for about 6 months I attempted to play social tennis for a couple of hours one day, felt typically beat up afterwards - so nothing new, then played again 2 days later, and this sparked a new level of PEM I hadn’t experienced before (it’s part of what convinced me I probably did have ME/CFS). I felt sick to my core, like nautious but not relating to the stomach, difficult to describe but the experience made me feel awful and floored me – I was pretty much bed bound for a week (and I've never been bed bound really, outside of the odd particularly harsh viral infection)
I'm afraid your self-diagnosis plus confirmation from a UK clinic is not useful
I’m afraid I don’t post here to satisfy your criteria for what is ‘useful’, I was answering a question candidly
Have you been receiving CBT/GET from a clinic?
Nope, although I did try NLP/CBT to appease my mother at one point, and found it offered/reinforced some valuable lessons but did little to improve my situation personally (as I didn’t really have any unhelpful attitudes/beliefs that were holding me back)