Oh that might be a good idea... I thought the Rituxan Thread was the place to do that...duh like I said I am new to this online forum stuff...and didn't realize I'd be steppin into a snake pit by finally answering to a lot of peeps who were wondering how the Rituxan was workin for me....
We are all learning here Jacque. It never occurred to me (just as an example) that a reporter would take a patients blog and then use it to misrepresent what they were trying to tell us about this drug.
I think that was what made some of us think about the things we are sharing here and how to do it. I was one of the patients who encouraged you and asked you to write about your experiences early on. I still want to hear them. Don't want, though, for your comments to be picked up by one rotten spy and be used to attack the drug or the doctor. Don't think that they would hesitate to use quotes out of context.
Maybe it is not worth us censoring ourselves or taking to another part of the forum. What's your opinion?
Really sorry that this is so upsetting for all of us and especially when you have been so kind and brave to share your experience.