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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Vote once for each of two ME orgs from anywhere to win £2000

Bob

Senior Member
Messages
16,455
Location
England (south coast)
In case helpful, here are various Facebook sites that I've come across (I'm not suggesting bombarding them with messages to vote, but I thought people might find them helpful, generally)...

ME Research UK:
https://www.facebook.com/MEResearchUK

ME Association:
https://www.facebook.com/pages/ME-Association/171411469583186

Newcastle University ME/CFS research page:
https://www.facebook.com/pages/ME-CFS-Research-Newcastle/526359017390431

Invest in ME:
https://www.facebook.com/groups/5804522506/

CFIDS Association of America:
https://www.facebook.com/CFIDSAssn

National Centre for Neuroimmunology and Emerging Diseases (NCNED)
Griffiths University, Australia (Professor Sonya Marshall-Gradisnik's team):
https://www.facebook.com/pages/Nati...y-and-Emerging-Diseases-NCNED/301252900007181

MEandYou
https://www.facebook.com/MEYOU.no

Voices from the Shadows:
https://www.facebook.com/VoicesfromtheShadows

I'm sure that there are plenty more!
 

Sasha

Fine, thank you
Messages
17,863
Location
UK
Sasha, I just looked up Thing X, and guess what? The name is actually "Thing X"! o_O:)
I don't understand what it's all about, but I don't think it's very big, and Facebook is massive.
Nearly everyone in the UK seems to have a Facebook account.[/quote]


Bob - what, seriously?!! I just made it up! That's a bit freaky. Maybe it's a term whose time has come! :)
 

Bob

Senior Member
Messages
16,455
Location
England (south coast)
Bob - what, seriously?!! I just made it up! That's a bit freaky. Maybe it's a term whose time has come! :)


lol, you made it up? :eek:

(I thought maybe you just thought you were making it up, but had actually remembered it correctly!)

So it's not the site you were thinking of then. I didn't think it looked very impressive.
 

Sasha

Fine, thank you
Messages
17,863
Location
UK
lol, you made it up? :eek:

(I thought maybe you just thought you were making it up, but had actually remembered it correctly!)

So it's not the site you were thinking of then. I didn't think it looked very impressive.


Yes, I really did make it up - as far as I know - I've got absolutely no memory of having heard it and that's fairly common for me to use language like that to describe an unknown (Mr X, etc.).

I didn't check out the site - I'll never have seen it anyway - I'm clueless about this stuff and always a good 10 years behind.
 

Sasha

Fine, thank you
Messages
17,863
Location
UK
Bumping... late evening here and hoping that our friends abroad will do a bit of voting! :)
 

Sasha

Fine, thank you
Messages
17,863
Location
UK
Insomnia! :confused:

A chance to give this a little bump...

Have you voted yet? Told your friends about the freeee moneeeeyyyy...