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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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what symptoms "count"in ME/cfs?

Allyson

Senior Member
Messages
1,684
Location
Australia, Melbourne
Interesting post in form a fb friend

Every time I've heard Mary Dimmock speak she's been impressive:


"CDC states that Oxford, Fukuda, Canadian and the ME-ICC “identify similar pools of patients”.

But Fukuda does not require PEM and Oxford only requires 6 months of fatigue and allows psychiatric illness.

Numerous studies have shown that these definitions are not all the same patients.

Yes, ME is heterogeneous but this heterogeneity is a manufactured artifact of inappropriately combining all these diverse definitions and conditions into one clinical entity called CFS."

Link to short article

http://thoughtsaboutme.com/2013/05/23/mary-dimmocks-may-2013-cfsac-testimony/



cheers

Ally