• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Expert Opinion on Flu Shots?

Andrew

Senior Member
Messages
2,517
Location
Los Angeles, USA
What do the ME/CFS experts say about flu shots? What are their experiences with patients who have flu shots? Also, what about pneumonia shots?
 

WillowJ

คภภเє ɠรค๓թєl
Messages
4,940
Location
WA, USA
this is what Dr. Lapp says: http://drlapp.com/resources/influenza-vaccination/

here is a summary version of several recommendations:
http://www.healthcentral.com/chronic-pain/c/5949/145399/fibromyalgia

There are some recent studies:

http://forums.phoenixrising.me/inde...patients-with-chronic-fatigue-syndrome.20956/

http://forums.phoenixrising.me/inde...mmune-function-in-patients-with-cfs-me.20563/

and maybe more

I personally avoid all vaccines because I have severe downturn in my illness. For me it's better to avoid certain worsening rather than hope the shot will provide a benefit (seems uncertain whether our immune systems will work right anyway). The choice won't be the same for everyone.
 

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
What do the ME/CFS experts say about flu shots? What are their experiences with patients who have flu shots? Also, what about pneumonia shots?

There are differing opinions though my docs have told me to avoid both of them.

Sushi
 

HowToEscape?

Senior Member
Messages
626
YMMV.

Some of us have nasty reactions to flu shots, not surprising for folks with bollixed immune systems. OTOH, I ask for the flu shot and seem to have a mild flu or none each season that I've used it. I live in a huge, filthy city so whatever's going around has a good chance to reach me at some point and figure a full course of flu would set me back quite a bit.

I believe that it would help us if 100% of healthy people would get the shot. There'd be less flu around (though not none) for us to catch.