Just FYI, Autoimmunity Research Foundation is Marshall/Marshall Protocol, which folks seem to have very polarized feelings about. Do some Googling, and some searching on the PR site and you will find plenty of info, including pieces of my story and my opinion/experiences.
Thanks Symptomatic, I read quite a few of the threads, and WOW. One of the doctors I have consulted wants me to do a modified MP, but my blood pressure is already VERY low without Benicar. He wants me to take just Minocycline just once a week. Although I have been dxd with Lymes, Mycoplasma, EBV etc, I have been reluctant to try it
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I will look at my 1,25D level, but where do I start on all of the other tests you are talking about. The hypercalcemia, and the other issues could be a problem for me. I just recently sent off a test to Genova for the TH1/TH2, and a 24 hour cortisol. I also did a Fry test, but I am not sure of the legitimacy of this test.
Where on earth do you find a doctor who has the intelligence to look at all of this? Mine here is the absent minded professor.
I do have a snp on the VDR taq gene, and still see a possible link here with the MP. By the way there is a homeopathic center here in town that treats all of the above issues with homeopathy. I talked to one of their previous clients who is totally well now, who did their protocol for Lymes, and was well after one year, and she even reversed her osteoporosis. She still has a "heart" defect caused by the Lymes, but is VERY active, and has her life back. It is hard for me to believe this stuff works, even after talking to this lady. BTW, they gave her homeopathics to take if the "detox" symptoms got too bad.
I would be interested in your progress now, and perhaps any doctors or easy to digest research.
Thanks, Debbie