Fecal Transplants

[Misfit Toy]

I have seen fecal transplants mentioned a few times and some say "google it." Well I have and I am wondering has anyone here had it done and where do you go to have it done? It's not something I am able to find on the internet in my area. Also, I am not even sure if I am a candidate, so how does one find out if you are even able to have it? Do you have to ask a friend to donate "crap" to you? That sounds and seems crazy. I know that not one of my friend's would ever talk to me again...they would think I was nuts. Any insight would be greatly appreciated.

 

[SickOfSickness]

I am finding this site to be informative for initial questions. http://thepowerofpoo.blogspot.com.au/p/faqs.html

 

[Misfit Toy]

As usual, this looks like a lot of work. The list of clinics on the site is now gone. Weird. Now one of my questions is, how are sick people...really sick people supposed to jump through hoops to find out info and then go there, wherever there is? Some leave the country to do this? Gosh... It amazes me that so many with CFS can do this. I am just too sick.

 

[SickOfSickness]

The clinics page is working for me. Maybe you found a broken link but can access it from other pages? There are some in NY, CA, etc. http://thepowerofpoo.blogspot.com.au/p/clinics.html

The site talks about people doing home infusions mostly. It has a detailed long page about how to ask and find a donor.

I know what you mean though. To do it properly donor and recipient need a bunch of testing done. To be more sure that the transplant will be worthwhile and not make the recipient worse.

 

[SilverbladeTE]

Transplanting feaces...does this mean the psychobabblers are on the transplant list?
I keeed! I keeed!

 

[MishMash]

Our esteemed guru docs, like dearest Nancy, Lapp, Enlander, are the ones who are supposed to be pushing the envelope and investigating this therapy. I asked Klimas during my last (and final) visit and she was horrified by the idea of putting somebody else's doody in your colon. She acted like she'd never heard of it before. It was like talking to a high school girl in front of the lockers, "I mean, like, that is SO gross!! Like, why would anybody every DO that?!!". You'd think somewhere in that new shiny clinic of hers, she could find a place to run some tests on this.

And people wonder why I say these specialty docs of ours are so worthless and overpriced. No imagination, no thinking outside the box, no curiosity. Just endless crap to kill imaginary bugs, viruses, .. and don't forget to pay cash on the way out please.

 

[Misfit Toy]

That's funny. I like that. But, I have to say mishmash, it does seem kind of crazy. I don't like the idea of having someone else's "do-do" inserted in my butt. It gives me the creeps. However, if it works...I might try it. Sometimes, I think I would eat a tire if it actually cured me. But, since there are no cures.......

But, I agree with what you said about the specialty docs. I really can't understand the reason for going. They really don't know anymore than anyone else and the money that they charge is astounding. I think it's so interesting how much they charge super sick people who's monetary position may be in the dirt. Total BS.

I do feel we have bugs, viruses, etc....but the real question is; why? Why do these viruses, bugs and the like act up...come and go and come back again. What is going on? And no more hypothetical answers.

The government would need to help with that one. Help fund it, believe...truly believe in it. Wish that day would happen during my lifetime.

 

[MishMash]

I have seen fecal transplants mentioned a few times and some say "google it." Well I have and I am wondering has anyone here had it done and where do you go to have it done? It's not something I am able to find on the internet in my area. Also, I am not even sure if I am a candidate, so how does one find out if you are even able to have it? Do you have to ask a friend to donate "crap" to you? That sounds and seems crazy. I know that not one of my friend's would ever talk to me again...they would think I was nuts. Any insight would be greatly appreciated.

Spitfire,
There is an office in Oregon that sells s**t for this purpose. According to their website, it costs a mere $7000, but that includes "careful preparation" (probably using a blender the doc bought at Walmart), PLUS a "retreat" where after getting the "transplatation", you go off to some lodge, and engage in meditation, talk about your feelings, or some such baloney.

The doctor himself probably squats over a rusty cofffee can in his garage, then sells it to the poor c. diff. patients coming in the door. He knows other docs are not getting into this, hence the outrageous price.

By the way, Mayo Clinic, the stodgiest, most conservative hospital in the U.S. has proven many times that this therapy DOES WORK. Once again, I have to ask why our pseudo-brilliant genius cadre of CFS specialist docs has not shown the slightest interest in this simple, effective therapy. Idiotic. http://www.mayoclinic.org/medicalprofs/fecal-transplants-ddue1012.html

Where to buy commerical poop (if you can afford it):
http://fecalmicrobiotatransplantation.com/FMT/home.html

 

[Misfit Toy]

Mishmash, you are cracking me up!! Thank you! Holy sh*T!! Well, clearly it's not holy. Well, you know what?...that sold me. The Mayo Clinic does this...wow! Now, I am listening. But seriously, $7,000. Holy sh*t...it's poop! This is crap. Anyway, I am still laughing. I love a good laugh.

I have to look into this, but I can't afford $7,000 for poop! I may have to call one of my friends and see if they will donate.

I still have to say it, the idea of someone else's "poo poo platter" inserted into my rear end, or intestine gives me the willies.

A retreat after poop transplants? Fancy. Well, I would need a drink.

 

[MishMash]

The Spitfire
Unfortunately, the nasopharyngeal (tube down your nose, into your small intestine) technique is more effective than the up-the-butt technique (at least according to most studies). Apparently, most of the pathogenic bacteria are centered in the small intestine. So changing the flora there is most effective. In some cases, as you might have read, it is life-changing and life-saving.

The Oregon poop-for-sale outfit (mentioned above) only does it via the butthole entry method (sorry). So it is not as permanent nor effective. It only deals with pathogenic bacteria in the lower half. Not the source. But you do get that wonderful retreat afterwards. That's worth $7000, isn't it? You can talk to fellow patients, standing around in your spa-provided, white terry cloth robes, while sipping cocktails, "so how was your transplantation?"

I believe there are websites and youtubes that show you how to do a self-administered transplant. I'm not a doctor, but if you have a close, and I mean really close friend, who won't disown you forever, that might be the way to go. You would just have to pose the question very delicately: "Umm, listen, we've been good friends for a while, right? Well, about those bathroom breaks you take every day; would you mind taking this tupperware container in there with you and ...?"

 

[Misfit Toy]

How would you do it alone if you need a tube up nose and into small intestine? You would need a skilled person to do that...God knows, I am too sick and would wreck my nose or something..I am so out of sorts.

Seriously, that's even crazier. Doing it yourself. Again.....I will wait until some more clinics or what not do this. This much work for anything at this stage in my illness causes too much stress!

Again Mishmash.....love the sense of humor.

 

[heapsreal]

maybe we need a compost bin awe. There has to be away to extract the bacteria they want out of it and then implant it i guess. or even just pharmaceutical quality probiotics with variety of bacteria implanted , would help people get over the yuk factor, if it works.

Im sure there was a doc who used to kill everything in the gut with antibiotics and antifungals, so starting with a clean slate and then go on intensive probiotic program to repopulate the gut with good bacteria. I just cant remember where i read this though as it was awhile ago??

 

[MishMash]

How would you do it alone if you need a tube up nose and into small intestine? You would need a skilled person to do that...God knows, I am too sick and would wreck my nose or something..I am so out of sorts.

Seriously, that's even crazier. Doing it yourself. Again.....I will wait until some more clinics or what not do this. This much work for anything at this stage in my illness causes too much stress!

Again Mishmash.....love the sense of humor.

God no! Don't put a tube down your throat for that purpose. Or for any reason. I can't imagine the results of an accident. Talk about a new low in life. I think the do-it-your-selfers are referring to the up-the-butt method. But as you said, getting the donor, without outting yourself as some kind of freak is the really hard part. I'll bet it would help many patients tho...

 

[Misfit Toy]

HEE HEE....ahhhh...so funny. RIOT. I love it.

I honestly don't know one friend that would donate their poop to me, but thank GOD I don't because I would think they were beyond weird. The things we do to get better...it's just come to an all time LOW....

 

[Junto]

God no! Don't put a tube down your throat for that purpose. Or for any reason. I can't imagine the results of an accident. Talk about a new low in life. I think the do-it-your-selfers are referring to the up-the-butt method. But as you said, getting the donor, without outting yourself as some kind of freak is the really hard part. I'll bet it would help many patients tho...[/quote

The hard part for me would be finding someone with suitable fecal matter. Everyone I know eats processed crap. If I were to do this, I'd want some damn fine fecal material, maybe from an indigenous hunter-gatherer.

 

[invisiblejungle]

They really need to create an organization that tests people's poop to identify high-quality donors. Then they could create a network so we can find local sources, and people can get paid for their poop. I don't know anything about website design, but if I did I would make a Google Maps-based service for this. I would call it Poo Pals or maybe Fecal Friends.

 

[tyson oberle]

The Spitfire
Unfortunately, the nasopharyngeal (tube down your nose, into your small intestine) technique is more effective than the up-the-butt technique (at least according to most studies). Apparently, most of the pathogenic bacteria are centered in the small intestine. So changing the flora there is most effective. In some cases, as you might have read, it is life-changing and life-saving.

The Oregon poop-for-sale outfit (mentioned above) only does it via the butthole entry method (sorry). So it is not as permanent nor effective. It only deals with pathogenic bacteria in the lower half. Not the source. But you do get that wonderful retreat afterwards. That's worth $7000, isn't it? You can talk to fellow patients, standing around in your spa-provided, white terry cloth robes, while sipping cocktails, "so how was your transplantation?"

I believe there are websites and youtubes that show you how to do a self-administered transplant. I'm not a doctor, but if you have a close, and I mean really close friend, who won't disown you forever, that might be the way to go. You would just have to pose the question very delicately: "Umm, listen, we've been good friends for a while, right? Well, about those bathroom breaks you take every day; would you mind taking this tupperware container in there with you and ...?"

MishMash since a fecal transplant is most effective "into your small intestines" I wonder if we could just simply drink a fecal transplant instead of doing the enema? Does anyone know?

 

[tyson oberle]

We will probably never find a perfect donor. Yes almost everyone "eats processed crap", but they probably have better bacteria in their guts than we do. I found a donor but I admit I am a little uneasy about using him because he drinks soda and beer and he eats "processed crap", but at least he's healthy and strong, has a good disposition and he tells me he has no constipation or any gut issues. I have known him for almost 20 years.

 

[maryb]

I read recently that in the 'old days' doctors knew that drinking a small amount of healthy poo in liquid was a good treatment for intestinal ailments , they gave it patients frequently. Then we got drugs!!!

 

[sianrecovery]

The sad truth is, many of us have needed abx to survive, and there is no real way to replace what you kill. Yes, we can take probiotics, and I do, but they dont and in fact cant perfectly mimic my own bacteriodes. Given I have needed abx for over thirty years now because of a genetic kidney disorder, I can only make the best of a bad situation in terms of gut health. I can't afford KDM, and anyway, I cant be arsed....yes! A pun!