Allyson
Senior Member
- Messages
- 1,684
- Location
- Australia, Melbourne
HI Jimmels,The first medical person to take my illness seriously and treat me like a human being is a FNP. I first went to her because she had diagnosed a friend's daughter with POTS, which I knew I had. How is it that NPs know about ME/CFS and POTS while 'regular' doctors continue to deny these illnesses even exist?
I can only touch my nose with my tongue if I push on both with my fingers, but I don't think that is what Allyson is looking for!
it's interestng that you can even do that - most people can't do that by a long shot.
Ask around you relatives perhaps and see who else can do it
Though I cannot I have heaps of relys who can - the genetics have not been worked out yet.
Oh nd maybe look at the other thread so see if you have any other attributes/ history
http://forums.phoenixrising.me/index.php?threads/is-me-due-to-ehlers-danlos-syndrome-stretchy-veins.20351/
cheers,
Ally