patient.journey
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My doctor wants me to start Valcyte as my test numbers are getting more high every time but i would like to know best dosage and protocols please !!
Thnx
Thnx
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i don't know where u are, but if i were you the first thing i'd do is: dump the infectologist.
OP, PLEASE look at the various threads started by undcvr, heapsreal, SOC etc on using valcyte.
The Montoya Valcyte protocol is 900 mg twice a day for 3 weeks then decrease to 900 mg once a day and stay on it for at least 6 mos. This is the protocol I am starting in a few weeks for HHV6.
The Montoya Valcyte protocol is 900 mg twice a day for 3 weeks then decrease to 900 mg once a day and stay on it for at least 6 mos. This is the protocol I am starting in a few weeks for HHV6.
The usual treatment for either/both is valganciclovir (Valcyte) one 450-mg capsule daily for three days, followed by two 450-mg capsules in the morning daily. Liver function tests are studied very carefully. If there is any abnormality, one alters the dosage. Given the patient’s ability to safely tolerate two 450-mg capsules, dosing can be increased to two, 450-mg capsules in the morning and a one additional 450-mg capsule twelve hours later. Liver function tests, again, must be studied carefully and frequently.
I just came back from my infection disease doctor apointment and he was like i dont mind even if we go with your treatment trail for a year and he asked my help with the dosing if i have any ideas !
He wants me to start on 900 mg twice daily for 3 weeks and go for 900 mg once to continue my six month and a 450 mg for the rest of th year ,,,
He never treated this illness and he is trying his best so am so thankful for that !
Now i wanna ask abou montaya new protcol ? How much the dose he start with and how many times a day should we take it ?
Please guys help with this because he dont even knw th 900 mg should be taken one or divide it between the morning and night after i finish my first 3 weeks !!
SOC: Thanks for your post. I talked to my specialist, who felt that both the Montoya and Lerner protocols had their points. I have still decided to start with the higher dose, since I usually tolerate medication fairly well. If I have problems, I may switch to the lower dose protocol.
SOC: Thanks, I do appreciate your concern. I started on Valcyte yesterday and am going to go with the higher dose to start. I have thought about it a lot and discussed it with a friend who has done that protocol and I think it's the right thing for me. I will be getting blood tests to monitor for serious side effects and I know my friend will be keeping a close eye on me as I start the protocol . I am actually feeling fairly anxious about starting valcyte. Worried about massive herx (my HHV-6 titers are through the roof), about side effects and mostly worried that valcyte won't help me at all. I'm glad to hear of other people who have had success with this. Trying to keep a positive attitude.
Omar88: Just wondering what viruses you test positive for and how high your levels are. Could make a difference in what protocol is right for you. I don't see any problems with the protocol you mentioned, but it does mean being on the medication for a longer period of time -- maybe indefinately. You may want to weigh this against a higher dose for a shorter period.
Omar88: Just wondering what viruses you test positive for and how high your levels are. Could make a difference in what protocol is right for you. I don't see any problems with the protocol you mentioned, but it does mean being on the medication for a longer period of time -- maybe indefinately. You may want to weigh this against a higher dose for a shorter period.