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FDA should give CFS patients access to Ampligen! --Online Petition
- Thread starter JohnnyD
- Start date
Thanks for the update, Freds.
I got this email from Courtney Miller this morning (my bolding):
http://www.ipetitions.com/petition/ampligen/
The FDA Advisory panel voted that Ampligen is safe enough to market, given the serious and life-threatening nature of the illness and the lack of any approved treatments or medicines in the pipeline.
The FDA is noticing patient involvement on this decision, which is very good for our illness. Thank you for your emails to the Secretary of Health and the FDA. Keep them coming too! This petition is important as well because the FDA hasn't gotten 3,000 signatures on our illness before.
We can't let the FDA deny the only medication for ME/CFS in advanced clinical trials and send a message to pharmaceutical companies that it won't approve ME/CFS treatments.
Please sign and spread it today! Thanks for your voices.
Courtney Miller
Dear Friends,
Someone who was moved by patient testimony at the FDA hearing on Ampligen started an online petition to the FDA, which has already gotten 2,300 signatures from patients like us. My husband Robert is planning to deliver the petition to the FDA by the February 2 approval deadline. Please join us in signing it and spreading it, so we can break 3,000 this week!http://www.ipetitions.com/petition/ampligen/
The FDA Advisory panel voted that Ampligen is safe enough to market, given the serious and life-threatening nature of the illness and the lack of any approved treatments or medicines in the pipeline.
The FDA is noticing patient involvement on this decision, which is very good for our illness. Thank you for your emails to the Secretary of Health and the FDA. Keep them coming too! This petition is important as well because the FDA hasn't gotten 3,000 signatures on our illness before.
We can't let the FDA deny the only medication for ME/CFS in advanced clinical trials and send a message to pharmaceutical companies that it won't approve ME/CFS treatments.
Please sign and spread it today! Thanks for your voices.
Courtney Miller
Reno, Nevada
That's brilliant that we got over 3,000. Thanks for the updates and info, Freds, it's very helpful and encouraging to be kept abreast of things.
4,190 signatures now - very impressive!
Please sign if you haven't already:
http://www.ipetitions.com/petition/ampligen/
The decision is expected any time now. No time to lose!
Please sign if you haven't already:
http://www.ipetitions.com/petition/ampligen/
The decision is expected any time now. No time to lose!
Nico
Senior Member
- Messages
- 104
- Location
- New York State
I wonder how many signatures will be required to give the FDA a much needed wake up call? Another nail biter, waiting...
