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Hello, I'm new here. I just got back from the Mayo Clinic in Jacksonville, FL. I was sent there by a local neurologist who told me I might I have a possible ALS(Lou Gherigs disease) diagnosis! Scared and freaking out as Im a young mom of 2 and was getting ready to graduate from UWF...I was told by the specialist there that this is not ALS. He did send me to an infectious disease specialist because of a possible chronic EBV(mono virus)....The ID specialist said that he thinks I might have CFS...So here I am and wondering if anybody knows of the best Dr. to see about this since I want an answer to my symptoms. Since August I've been having shortness of breath here and there. Twitching, and occasional jerks. I've been losing my hair ever since I had mono back in 2005. I did have a couple of episodes that came and gone since then where I had slightly blurred vision, tingling, and fatigue. Just want to find a Dr. to possibly give the best help if this is what it is.