Allyson (I like Mish Mash Elvis Costello Aim is True reference) a question for you, you mentioned you had had a holter monitor and implied it was diagnostic of something relating to this.....what did they find out? I had one last year and they didnt tell me the results other than I am "fine" no heart problems. I found out after the fact they were assuming my complaint was about racing heart when it was really about oxygen hunger. They said my "palpitations" werent a problem, well I hadnt felt any significant palpitations then grrr seemed like an assumption on their part because of being female with "CFS". Anyway, I digress, I wouldnt think holter would be useful for stretchy vein problem diagnostics etc?
I had a positive tilt table 15 yrs ago but the cardiologist last year dismissed that theory as not significant.
I have had OTs/PTs tell me I am hypermobile in spots, causing some of the spine pain probably. I am short tho and don't look like classic EDS person.
I had a positive tilt table 15 yrs ago but the cardiologist last year dismissed that theory as not significant.
I have had OTs/PTs tell me I am hypermobile in spots, causing some of the spine pain probably. I am short tho and don't look like classic EDS person.