Still on the videos -
He works in a pub until 12 am, then stays up for a bit before going to bed. I can barely function after 8pm.
If i stay up until 12 this is what happens to me - i get wired and my legs start twitching, then i get very cold and start shivering and shaking. My brain goes blank and i cannot hold a conversation. My joints ache all over. Once in bed if i dont warm up i will start to shake uncontrolably, me body temp will keep dropping and unless i have the heating on and a warm body in bed with me i will shake for hours. If i am warm the wired feeling intensifies until even the sound of my husband breathing makes my startle reflex go off - this can go on for hours. Then my foot starts going into a clonus like spasm - it can do this every few mintues for over an hour at a time. Now i really cant sleep and will try to do relaxation or meditation in bed. Usually i will now be awake all night and finally sleep about 7 or 8 am for a few hours.
The next day i am like the walking dead. I have worked out for myself that i need to be in bed by 10, 11 the latest to stop this awful pattern from happening - but even so going to bed ear;ly has not cured my M.E.
He works in a pub until 12 am, then stays up for a bit before going to bed. I can barely function after 8pm.
If i stay up until 12 this is what happens to me - i get wired and my legs start twitching, then i get very cold and start shivering and shaking. My brain goes blank and i cannot hold a conversation. My joints ache all over. Once in bed if i dont warm up i will start to shake uncontrolably, me body temp will keep dropping and unless i have the heating on and a warm body in bed with me i will shake for hours. If i am warm the wired feeling intensifies until even the sound of my husband breathing makes my startle reflex go off - this can go on for hours. Then my foot starts going into a clonus like spasm - it can do this every few mintues for over an hour at a time. Now i really cant sleep and will try to do relaxation or meditation in bed. Usually i will now be awake all night and finally sleep about 7 or 8 am for a few hours.
The next day i am like the walking dead. I have worked out for myself that i need to be in bed by 10, 11 the latest to stop this awful pattern from happening - but even so going to bed ear;ly has not cured my M.E.