taniaaust1
Senior Member
- Messages
- 13,054
- Location
- Sth Australia
Now, the internet allows us to hide (guilty here ) behind pseudonyms. And that anonymity has it's good and bad.
( protection to speak w/ o scrutiny of disability cops for ex as a good, and privacy for those who may be well enough to work and don't want those in their workplace to hold it against them.
Im not wanting to pick on you but that wee bit of your post I so disagree with, that I feel like I have to comment on it "privacy for those who may be well enough to work but dont want those in the workplace to hold it against them"
I personally the whole time Ive been hanging out on the internet (early internet days and Ive I got ME 15 years ago) .. have never come across a ME/CFS person who is on the sites "AND WELL ENOUGH TO WORK" but is using fake names so that workmates dont find out that they are actually well enough to work. I just dont see that conning of others going on (not in genuine ME/CFS people.. thou I have come across two people over the years I believed was faking it and trying to use this illness to get benefits or off of work when they werent sick people at all.. I dont put them in with us thou as Im sure they didnt have ME/CFS and there will be always people out there trying to use fake illnesses to abuse the system).
Have you truely ever come across a ME/CFS person who truely was well enough to work and should of been and hiding that they are well enough to be working?? **wondering if you are judging this to be the case for some people at this site.. some people who may be appearing t be okay due to being able to post okay.. may be far sicker then you realise.. .. I'd love to know where your comment which to me was very strange cause i havent see this thing really at all amongst our communities).
That's the kind of things gov people eg social security depts and those who dont believe in our illness push.. that we are slackers hiding behind our illness and not really sick and should and can be working. That comment sounded like you'd taken on some of the views of very poor ME/CFS media in this area. Your comment there truely surprised me as as I said.. I just have never seen one with ME/CFS who was well enough to be working not doing so and trying to hide being well enough to. So was surprised to see that as part of a general statement on things.
anyway.. Im not about to get into debate whether there are people here who are weller then they are making out to be as I just dont believe that is at all the norm in anyway but just wanted to express I have never seen that and if u do want to share where that comment came from.. I'd love to hear.