DARN i just wrote a reply thanking everyone and the computer lost it.
I am now super tired and hope nobody minds if I just try to answer the Qs by quoting posts I made in the past.
From Sep 21: "Hi heaps, I just got my blood tests back today, HHV6 AB IGG was out of range 1:160 while IGM was in range 1:20,
but these are the *exact* same results I had back in Jan. pre-Amp. The ONLY significant diff. in my labs between now and January, (i.e. after 6 mo's of Ampligen) is that my NK cell function has gone up from 4 to 22... because my labs have NEVER shown me to have a current HHV6 infection Dr E has never felt this a super important area to look at, and he told me today that he didn't feel repeating the stomach biopsy I did in Belgium with Prof de Meirleir would be useful, because he said it wasn't unusual for such biopsies to show the virus because it was "latent" (i am no scientist but this was the word he used in his attempt to explain to me), despite my last year's biopsy showing LOTS of it. (I did want to ask him what the point was of doing a biopsy then, but I was too brain-fogged to know how to phrase it in a polite way.)"
Sep 26: "heapsreal, thanks so much
If you don't mind my asking what's your PERSONAL opinion on whether the AB IGG should go up or go down? Just logically. If you were too weak to produce antibodies to the virus to start off with and the immune modulator is now strengthening your immune system to make more antibodies than before, is it reasonable to think it should go UP?
P.S. I haven't consulted w/ Dr E further on this b/c he's of the opinion that the blood tests should be taken as gospel, that if the IG
M is in range you don't have a current infection. Since this is his line of thinking I can't try to ask him about the IGG since he considers it irrelevant
"
Sep 28: "BTW, short of what's quoted off of the HHV6 foundation website itself, are there any other authorities (any physicians???) who say that EVEN tissue biopsy is not enough????? This is what Enlander said to me in a nutshell. He said he did not think too much of the stomach biopsy I did last year with K De Meirleir because he said even if the HHV6 in my body was just latent, they could still have found a super high level of it in my stomach. I personally don't agree with this, but I have no evidence to back up my view (Enlander told me that even after I told him what the foundation website said).
Incidentally, the ton of hhv6 they found in my stomach was hhv6-b, not a."
This last post I wrote in response to my doc ignoring my quoting the hhv6 foundation info to him, which is: "
Short of a tissue biopsy, it may be impossible to find direct evidence of chronic HHV-6 infection." http://www.hhv-6foundation.org/associated-conditions/hhv-6-and-chronic-fatigue-syndrome