Bob
Senior Member
- Messages
- 16,455
- Location
- England (south coast)
horrible as it is, I'm wondering if this scandal with Jimmy Saville will, together with Hillsborough, "phone hacking", expenses scandal of MPs etc, finally crack open the sick pervasive secrecy and snobbish class culture crap of this country?
and thus, help us, because it plays a large part in keeping M.E. bottled up, secret and lied about.
I don't think that these individual events will change things for us, Silverblade, but I think that they are all part of a pattern of events that is leading in a direction that is favourable us.
I think it has all come about because of the information age, and I think that we are moving towards an age of transparency that will transform politics. And this process seems to be accelerating.
Like you, I've noticed this accelerated unravelling of previously stitched up corruption.
I think it's fascinating, and it seems to be accelerating, with new major stories in the media almost every month.
Like you say, there have been so many events that have unravelled recently.
I think we've already seen a difference for ME, over the past few years, because the internet has allowed us all to coordinate our efforts, and to fight those in the establishment who would like to maintain a monopoly on ME policy. I think we might have put a brake on the excesses of those in a position of power, in relation to ME. In the USA, Reeves was forced out of the CDC, which has led to slow but sure changes. In the UK, the MRC has changed its position on ME, and has dedicated funds towards biomedical research, and it seems to be following up on its promises. I think this is probably all related to patient advocacy.
I think the difference we make will now accelerate, but we've got a lot of catching up to do, in terms of research.
I'm so thankful that we have the internet, otherwise i'd have to rely on a quarterly magazine from a patient organisation for my only source of information!