Ian
Senior Member
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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They found more than 500 trials in total: 85% of the industry-funded studies were positive, but only 50% of the government-funded trials were.
While I think it's fair to assume that pharmaceutical companies are keen to have their products look as good as is possible, is it not also possible that some governments may not want to approve expensive drugs that could prove a burden to their own budgets? It needs to be recognised that all of those involved in RCTs can have desires for a particular result.
I thought this was a good piece, but I also think that the same concerns apply to cognitive and behavioural treatments More so really,as it's harder to even get good data, never mind deal with the danger of it then being misrepresented. So many of Goldachre's points apply to the PACE trial.
While I think it's fair to assume that pharmaceutical companies are keen to have their products look as good as is possible, is it not also possible that some governments may not want to approve expensive drugs that could prove a burden to their own budgets? It needs to be recognised that all of those involved in RCTs can have desires for a particular result.
I thought this was a good piece, but I also think that the same concerns apply to cognitive and behavioural treatments More so really,as it's harder to even get good data, never mind deal with the danger of it then being misrepresented. So many of Goldachre's points apply to the PACE trial.
I wonder if this is why many govts ignore herpes virus problems in cfs/me because if they stated this was a problem the govt's like australia and the UK with govt funded healthcare would have to pay for antiviral treatments which arent cheap.
he appears to be an ME denier