This is my most annoying symptoms. Brain fog is more debilitating, but feeling like I can't get a deep breath is incredibly frustrating.
I have went down different avenues but nothing has helped thus far. I also tried albuterol but didn't have lyck. My anaerobic threshold is low, but I don't think the air hunger is related to my AT because my air hunger is just as bad at rest and doesn't seem connected to my heart rate.
One theory I have seen several times is that air hunger is related to GERD. I know my air hunger is worse when my sinuses and acid reflux are bad. I have been trying varying dosages of H2 blockers, but was thinking of trying PPIs for a short while to see if it will help. I don't want to do that long-term since I don't think suppressing acid is good, but it would be nice to spend a day feeling like I am getting enough oxygen.
In my case I don't think it is related to diaphragm weakness because the rest of my muscles are pretty much back to normal strength now.
I have had several friends with CFS tell me they had air hunger in the past and then it just went away, which isn't helpful for stopping it but is at least hopeful.
If I find anything that helps I will report back