The next CFSAC meeting is in a couple of weeks, with the opportunity for advocacy. On the thread about the meeting, I suggested that it might be a good idea for those speaking at the meeting to have two or three major points that they could all mention (if they chose) rather than 20 people mentioning 20 different points and it appearing that there's nothing major that we need.
In the XMRV press conference today, Dr Lipkin mentioned that the NIH might be up for massive cuts ("sequestration" - I'm not up on it). If that's so, then those cuts could be used (again) as an excuse not to increase our funding. I think it's time it was recognised that whether the total NIH budget is $1 or $1 billion, ME research should get its fair share so cuts are irrelevant. Maybe that should be one of the major points to be mentioned at CFSAC?
It would be good to know what that fair share would be, in percentage terms. Has that research been done?
It could be a great title for an advocacy push - "the missing 1%" or something.
In the XMRV press conference today, Dr Lipkin mentioned that the NIH might be up for massive cuts ("sequestration" - I'm not up on it). If that's so, then those cuts could be used (again) as an excuse not to increase our funding. I think it's time it was recognised that whether the total NIH budget is $1 or $1 billion, ME research should get its fair share so cuts are irrelevant. Maybe that should be one of the major points to be mentioned at CFSAC?
It would be good to know what that fair share would be, in percentage terms. Has that research been done?
It could be a great title for an advocacy push - "the missing 1%" or something.