Jody Please may I post this story on my blog to raise awareness?
Shell,
Yes. Please do.
Thanks for that.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Jody Please may I post this story on my blog to raise awareness?
Reading this thread now makes me realize how fortunate we are that we do have the capabilities to use the internet and be in touch with each other.
This support is HUGE, especially for people who are otherwise isolated.
To suffer so much is horrible but, to have to suffer alone and isolated is the worst.
THIS IS THE MEMORIAL LIST. There are many stories here and I think a study of death rates in Cfs/ME was done with some of those involved in this list.
Jody - I will post it, thanks x