Which reminds, when Sophie Mirza died (CFS/ME) her routine tests were "normal", and other tests,
yet, upon an autopsy, there were clear inflammation showing in her spinal fluid. I can't remember what
else, but whatever if it was, it was only found upon the autopsy...
And yes, I am thinking of not bothering seeing more doctors, it ends up a treadmill of so called experts, leading to a maze with no exits!!
I read about immunology, and quickly reaclised, that even if I went along with a spinal, those tests are also non specific,
and that 50% of the time, or more, they can't detect infections. When they do find proteins, they can't interpret. It was the same with the neurologists. They did DNA tests, histoimmunological, etc.. and could not say what the abnomalities mean. They said there is glycation, but thats about it. Offered a muscle biopsy, I refused, because, upon reading about tests for mitochondrial diseases, the test is not accurate, may have to repeated several times, and even then, may not show anything.
If you have high iron level, which I have, there is inflamma, but whats causing it??? We don't know!!
I think in my case, its a mix, of whatever underlying pathology, and toxicites cummulative over the years, with galdoloinium thallium, local anesthetics and so forth.
There is improvement in the sense that my symptoms are not worsening since taking liquid trace minerals,
and daily bone broths. The importance of detoxing (gently) over time, is one step ahead, towards improvement, IMHO, that is if its do-able.
Going back to inflamma, we know there is damage to endothelial cells, we know there is oxidization, glycation, etc.. but, little in terms of reversal, although, some, such as Dr Bhuttar, promotes EDTA and so forth, if strong enough, which we are not. EDTA may rid of the problem temporarily, does not solve the inflamma process.
How are we to reverse the inflamma process? This could be what leads to our recovery, specially those of who are homebound/bedbound with hundreds of symptoms...