IntuneJune
Senior Member
- Messages
- 562
- Location
- NorthEastern USA
Well, it has been awhile since I have been here and am having trouble finding my way around...again.
A number of years ago, I was diagnosed with a primary immune deficiency, CVID, and started on IVIG. Almost a year and a half ago, I switched to subq Hizentra at home, much more comfortable.
When attending the PIDD meetings, so many folks present with ME/CFS symptoms as well, we all "talk" the same. I was diagnosed with fibromyalgia over 30 years ago.
Have others been diagnosed with PIDD? Receiving treatment???
I was reading through posts and saw that Corinne was on Hizentra, but that was not the topic in the thread, she referred to her blog, but I could not find the blog.
Wondering if others have been diagnosed. Thanks folks!
June
A number of years ago, I was diagnosed with a primary immune deficiency, CVID, and started on IVIG. Almost a year and a half ago, I switched to subq Hizentra at home, much more comfortable.
When attending the PIDD meetings, so many folks present with ME/CFS symptoms as well, we all "talk" the same. I was diagnosed with fibromyalgia over 30 years ago.
Have others been diagnosed with PIDD? Receiving treatment???
I was reading through posts and saw that Corinne was on Hizentra, but that was not the topic in the thread, she referred to her blog, but I could not find the blog.
Wondering if others have been diagnosed. Thanks folks!
June