new forum

[Shellbell]

The other thing that needs to be taken into consideration is "who" is reading the hair analysis and is treating the patient. It's like finding an experienced homeopath. For me, third time has been a charm. The first two homeopaths did absolutely nothing for me.

My experience in the past (5 years ago) with hair mineral analysis was nothing like what Christine was presenting. The doctor that gave me the test only discussed my mineral levels, my toxic metals, and tried to treat for such. Vitamin deficiencies and excess levels were never brought up or treated by that test. So experience and knowledge of the practitioner that is giving the test, I feel, is very important.

 

[Little Bluestem]

I think that the lab that the practitioner uses is also very important. When I began tissue mineral testing about two year ago, I found an evaluation of a number of testing labs. There was quite a bit of difference between some of the labs. Unfortunately, I did not keep the information on my computer. About the only thing I remember is that the lab that my dietitian uses was one of the ones with the highest rating. I think there were two highest ones. I also do not recall when the evaluation was done. Some of the labs may have improved their processes since it was done.

 

[barbc56]

That's how it seems to me too.

Perhaps I can take a too relaxed approach to my health (I don't think I've been tested for any of these things by validated or alternative testing), but it does seem as if it's only worth going to the trouble of having testing done when there is good evidence to show that the results will be accurate and meaningful.

For many with our DD, especially if you have IBS, it's important to get tested for things like vitamin B, Ferritin/iron, and vitamin D, perhaps other tests but these are the ones I was given. I have no idea if there is a reliable bloodtest for things like molybdenum nor the importance of getting these, but I do know the preceding tests are important. Low readings in any can exacerbate your symptoms especially pain and tiredness. My deficiencies are from absorption problems from IBS. My gastrointerologists referred me to a hematologist.

But I am not about to take a chance on getting an incorrect reading.

That being said, even with these issues taken care of, I still have the ME/CFS/FM and while these have helped some of my symptoms, it's certainly not a cure. Unfortunately, not even close.

Barb C.:>)

 

[Esther12]

especially if you have IBS

I've been lucky with avoiding other health problems... but the trouble with 'fatigue' is that the specialists tend to be quackier than one would expect with gastrointerologists. Ah well. Pleased you found something a bit helpful, and sorry to hear about your other symptoms.

 

[taniaaust1]

Have these results been confirmed elsewhere?

eg: If hair testing has not yet shown to be reliable, could it be that it wrongly found you to be deficient in molybdenum? Or have you since had this result checked and confirmed by others?

Yeah I also do agree there can be problems with hair analyses. I wouldnt have trusted a lab doing this without having a recommendation for the lab I used, as I have heard that some labs are much better then others.

My only proof that the result was right and I did have a deficiency is that I had noticable great improvement in one of my symptoms start after only a few days of starting to supplement it. The symptom the molybdenum fixed within days, I'd had consistantly for at least 14 years, actually a symptom I'd developed when a child before even the ME.
http://en.wikipedia.org/wiki/Molybdenum_deficiency
http://www.merckmanuals.com/profess...ncy_and_toxicity/molybdenum.html?qt=&sc=&alt= (seems this trace mineral has been very little studied, its needed to detoxify certain things in the body)

Due to copper showing on hair test.. my specialist (when I requested, he wasnt really interested in copper stuff), also got me tested for genetic copper issues which thou no positive result came up that about me having genetic issues with copper... I do think it was good to get genetic copper issue ruled out.
(thou copper issues can also be non genetic and blood testing copper isnt meant to be accurate as it dont hang out in ones blood. Those who actually have high copper in bodies often have low blood copper showing according to the Merak Manual which most doctors/nurses use, sometimes liver biopsy is needed to diagnose).

I see the hair test as like a guide on what things could be further looked at or tried.. can give clues.

Selenium.. The Merek Manual states "Diagnosis is made clinically or sometimes by measuring glutathione peroxidase activity or plasma selenium, but neither of these tests is readily available. "

Selenium deficiency can lead to hypothryiodism and Goiter among other things but it seems many of the blood tests arent available.

 

[cfs8years]

I have been taking B2 now for 4 days. 75mg in divided
doses. First day I felt a very warm feeling in my back area
which I think is a copper or iron detox. I had lots of brain
fog and my stools the first 2 days were very smelly. These
are good signs

Unfortunately the last 2 days I have been sleeping a lot! Like
12-13 hours straight. It doesn't feel like I am detoxing at this
moment, but I still have this sleepy feeling. Pretty sure my
liver is being overtaxed. I am going to stop the b2 for one
day and then start at a much lower dosage.

Untill now I haven't read Christine's reasoning for adding
B2. I did read here thoughts on manganese and choline
and its influence on the liver's Endoplasmic Reticulum(spelling?).
How did she find out about b2 deficiency?

Another thing I don't see being addressed is what influence
taking manganese has on other minerals. I read that
manganese has a antagonistic and synergistic effect on
chromium. I know from experience that chromium is antagonistic
to copper.

And what about B2 depleting other vitamins? I think at this moment
it would be better not to continue this protocol as there is too little
information.

I registered on the new hairanalysis forum, but still can't post there.
I get this when I try to login:

''The specified username is currently inactive. If you have problems activating your account, please contact a board administrator.''

The forum administrator contacted me via my hotmail address asking why
I haven't posted. Funny thing is I can't reply as the email address is unknown,
so I can't reply to this message without knowing who to reply to. This is the
first time I have received an email that does not contain the email address of
mailer.

I hope somebody can get in contact with Christine about these and
other questions.

 

[brenda]

cfs8years

That was a big dose to start on but at least you know that b2 is an issue as you had a reaction. Manganese is necessary on this protocol and b12 but you are right that there is not enough information but there will be a paper from Christine coming out.

Taking these three supplements has made a big difference to me but it is important to get them balanced properly so that you are not depleting things that are important for healing.

I am not sure which forum you have tired to join. If it is meandmyhair.freeforums.org try again it should work

Brenda

 

[cfs8years]

cfs8years

That was a big dose to start on but at least you know that b2 is an issue as you had a reaction. Manganese is necessary on this protocol and b12 but you are right that there is not enough information but there will be a paper from Christine coming out.

Taking these three supplements has made a big difference to me but it is important to get them balanced properly so that you are not depleting things that are important for healing.

I am not sure which forum you have tired to join. If it is meandmyhair.freeforums.org try again it should work

Brenda

Dear Brenda, I am glad you are doing well.

I am taking manganese 15mg daily now. Also eating 2-3 eggs
daily to get choline which Christine mentioned is important for
manganese to be stored in the liver. I did not know about
b12. A few hours ago I drank A red bull which contains B vitamins
and man I started to sweat big time. How much B12 should we take?

Yes I joined the forum you mentioned. I got an email that I joined
succesfully, but needed to wait untill the administrator would activate
my account. Then I received an email in my hotmail asking why I had
not posted yet.



I did not

 

[Little Bluestem]

Unfortunately the last 2 days I have been sleeping a lot! Like 12-13 hours straight. It doesn't feel like I am detoxing at this
moment, but I still have this sleepy feeling. Pretty sure my liver is being overtaxed. I am going to stop the b2 for one
day and then start at a much lower dosage.

Maybe you are tired from all of that detox 'work'. Christine told me to back off for a day whenever the treatment made me feel less well. I think stopping for a day and starting at a much lower dose is a good idea.

I get this when I try to login:
''The specified username is currently inactive. If you have problems activating your account, please contact a board administrator.''

Is there an e-mail address for the board administrator or some means of contacting her on the site?

I am taking manganese 15mg daily now. Also eating 2-3 eggs daily to get choline which Christine mentioned is important for manganese to be stored in the liver.

Is Christine aware that you are taking that amount of manganese? It is more than she told me to take, but you are you and I am me.

 

[brenda]

cfs8years

You need to take b12 b2 and manganese in balance so that you have brown stools and yellow urine. It is best to divide doses through the day. b12 is usually taken in small amounts for example 12.5mcg. It all depends on how depleted we have been and how they get used up once the liver starts releasing iron if we have that problem and we need to back off if we feel bad. Without the guidance of Christine, you are really risking causing problems and none of us here is an expert. I would advise you to concentrate on foods high in b2 and manganese and maybe taking b12, stop folic acid from supplements and fortified foods, and no b complex which depletes b2 until you get advice from Christine.

I am admin of the site. I sent you an email asking for identification as a member of this site as we are restricting membership. I did not receive one. The reminder you got is automatic. Try joining again and if it does not work let me know.


Brenda

 

[cfs8years]

Maybe you are tired from all of that detox 'work'. Christine told me to back off for a day whenever the treatment made me feel less well. I think stopping for a day and starting at a much lower dose is a good idea.

Is there an e-mail address for the board administrator or some means of contacting her on the site?

Is Christine aware that you are taking that amount of manganese? It is more than she told me to take, but you are you and I am me.

I did not stop yesterday, but instead lowered to 12.5mg. Took this three times
yesterday and I did not sleep so much today. So I am going to continue at that
dosage.

No Christine is not aware of the amount of manganese I am taking. Basically I just
experiment with manganese. I tried manganese the first time about a year ago
or so when I read Christine's post about choline and manganese. I try to get brown
stools as I often have quite pale stools which is a sign of too little bile. Bile is very important
in the excretion of copper.

I see that Brenda is the forum admin. She recommends I try joining again which I will do.

 

[cfs8years]

cfs8years

You need to take b12 b2 and manganese in balance so that you have brown stools and yellow urine. It is best to divide doses through the day. b12 is usually taken in small amounts for example 12.5mcg. It all depends on how depleted we have been and how they get used up once the liver starts releasing iron if we have that problem and we need to back off if we feel bad. Without the guidance of Christine, you are really risking causing problems and none of us here is an expert. I would advise you to concentrate on foods high in b2 and manganese and maybe taking b12, stop folic acid from supplements and fortified foods, and no b complex which depletes b2 until you get advice from Christine.

I am admin of the site. I sent you an email asking for identification as a member of this site as we are restricting membership. I did not receive one. The reminder you got is automatic. Try joining again and if it does not work let me know.


Brenda

Hi Brenda. I am exactly trying to do what you mention in the first sentence minus the
B12 as I did not know that vitamin was important as well. Does Christine explain why
we can/should take B12?

One more thing Brenda. Is it possible to ask Christine about the relationship between
manganese and chromium? Here is the thing. We have too much copper and iron because
we can't excrete these well. I know that copper is antagonistic to manganese, but also
to zinc, chromium and molybdenum. Christine mentioned that as soon as copper gets
excreted correctly, molybdenum levels will rise again. I guess zinc should as well, but
not sure about chromium and since we are taking manganese we might actually deplete
chromium even more as manganese and chromium seem to be antagonistic. Chromium is
very important in insulin sensitivity, cortisol control.

I will try to register again.