Hi everyone,
I've written on here numerous times about some more unusual symptoms I have to see if others may share them but in most cases no one did. Last night I googled those symptoms along with "Lyme Disease" and immediately started getting hits on Lyme forums. I don't know much or really anything about Lyme Disease and am not sure it really could make sense that I may have it. I wanted to see if anyone may have some insight, given my symptoms and history.
The symptoms that I have that some with Lyme seemed to share but most on here did not:
-Severe facial pain, kind of like a TMJ Pain and bone pain but in my jaw, cheekbones and nose. Usually as a PEM/crash symptom, not daily
-Red and hot butterfly shaped flushing on face
-Swollen face, especially upon waking
-Daily fever
-Severe muscle wasting not explained by inactivity
A main reason I have been skeptical of if I may have Lyme is my history with being sick. I first got sick more than 10 years ago and after struggling for some years had years of remission, if not a full remission enough so that I was able to function basically normally. A few years ago symptoms returned and then got much much worse after severe overexertion about 1.5 years ago. Since then I've been very low functioning. Could Lyme have long remissions like that and have resurfaced after severe exertion the way CFS can?
I also had previously ruled out Lyme because my PEM is so bad and obvious. I didn't think Lyme had that but now I read that you can have PEM with Lyme also.
I did have one Lyme test done a few years back and it was negative. But I'm not sure how well it was carried out, I remember it having some specific instructions and the doctor's office seeming somewhat incompetent. And I think diagnosing Lyme is not always simple?
If I do have Lyme, does it mean I have it in addition to CFS or instead of. You can have both right, but how would you be able to know? I do mean all the criteria for CFS and ME in all of the various definitions. Any insight? I don't remember a tick bite or bull's eye rash but I had a dog who got ticks t the time my sickness began.
Thank you so much.
I've written on here numerous times about some more unusual symptoms I have to see if others may share them but in most cases no one did. Last night I googled those symptoms along with "Lyme Disease" and immediately started getting hits on Lyme forums. I don't know much or really anything about Lyme Disease and am not sure it really could make sense that I may have it. I wanted to see if anyone may have some insight, given my symptoms and history.
The symptoms that I have that some with Lyme seemed to share but most on here did not:
-Severe facial pain, kind of like a TMJ Pain and bone pain but in my jaw, cheekbones and nose. Usually as a PEM/crash symptom, not daily
-Red and hot butterfly shaped flushing on face
-Swollen face, especially upon waking
-Daily fever
-Severe muscle wasting not explained by inactivity
A main reason I have been skeptical of if I may have Lyme is my history with being sick. I first got sick more than 10 years ago and after struggling for some years had years of remission, if not a full remission enough so that I was able to function basically normally. A few years ago symptoms returned and then got much much worse after severe overexertion about 1.5 years ago. Since then I've been very low functioning. Could Lyme have long remissions like that and have resurfaced after severe exertion the way CFS can?
I also had previously ruled out Lyme because my PEM is so bad and obvious. I didn't think Lyme had that but now I read that you can have PEM with Lyme also.
I did have one Lyme test done a few years back and it was negative. But I'm not sure how well it was carried out, I remember it having some specific instructions and the doctor's office seeming somewhat incompetent. And I think diagnosing Lyme is not always simple?
If I do have Lyme, does it mean I have it in addition to CFS or instead of. You can have both right, but how would you be able to know? I do mean all the criteria for CFS and ME in all of the various definitions. Any insight? I don't remember a tick bite or bull's eye rash but I had a dog who got ticks t the time my sickness began.
Thank you so much.