Freddd,
I am thinking I am the perfect storm for the B12 deficiency (MTR, MTRR, vegetarian, MTHFr though hetero, mold and lyme exposures after nursing my children for 7 years straight.. im assuming something there is an issue)..
Ive read the book, Could It Be B12, and actually saw your posts on the forum related to that book some time back. I dont have a copy now since its back in my mold contaminated house and most likely a landfill if my husband has already thrown it out so cant refer.
Neubrander (not author of he book, autism MD) says something about some people (his special interest being autism) have B12 dependency not definciency. If I am remembering correctly he is saying that deficiency is generally easy to take care of and I think in the book I mention above, I got the same idea from it as well.. eventually you are taking shots once a month but she may have daily sublinguals?
What do you think is going on here? How long does it take to restore a deficiency and then are we really talking about a dependency based on genetics? Im assuming a dependency would result in a deficiency that continually needs replinishing? Do you think you will ever need less b12 and metafolin? IS it a folic acid defienciency as well or dependency?
I was not sick until something pulled the plug for me. and this was in my 40s. My father
s family all died young of heart attacks and strokes. Bad backs, degenerative disks, multiple surgeries, chronic pain from back issues and I am thinking MTHFr and MTR, MTRR as well potentially. My dad had a massive stroke living in a highly mold contaminated house. His b12 levels are 400 which the MDs are saying is fine.. its above the cut off.. I am wondering if this is a huge issue for him.
I have the CFS.. my sister had the cfs (long story, better) no one else. They all died young of heart attacks and strokes. I have the high serum FA adn B12.. at least my dad doesnt. Is there a reason to all of that?
Neubrander focuses on the brain (and I'll assume the spinal cord is connected). He uses concentrated Mb12 subcutaneous, his special concentration that only a few compounding pharms know how to make. It lasts with continual dosing for about 3 days I think. He though uses folinic, or did as per article I read. Some sucesses and I am sure some failures.
I think his specific slow release every 3 days shots are interesting. The concentration is set so that the b12 stays subcutaneous so more of a true slow time release.
AS for detox of metals, at least.. yasko does see heavy metals flowing out and charts this with individual patients. I know this helps only a few like everything else. Her focus is not on repair as much, I think.. you seem to focus more on repair and restoration via methylation, which (pardon my ignorance) is how b12 works?? It works through the methylation process? which repairs dna, etc.
Yesterday was really a bad day emotionally, mentally, physically as far as sense of being very off in my head in several ways.. including a feeling of light headedness and passing out.. pulse was low and afraid to use more potassium (then the 600mg total) and this am I woke up with my entire back almost vibrating and to lesser degrees and in order my shoulders then legs. Getting up and moving helped and then I went on with the 5mg Mb12 with 800mcg metafolin three times a day with potassium pills scattered in there.. upto 600mg.. I know.. I have to slowly experiment with that.
My urine though is not a hint of red, rather more clear than usual.
Thank you,
Robin
Hi Robin,
No, I don't. I think that as proper functioning of the body is restored the body will start handling these things in an orderly fashion.
When a person starts mb12 and metafolin (other combinations may also work but this is most predictable with methylation starting almost immediately) the first thing induced in almost 100% will be low potassium. However, starting potentially 5 minutes after neurological changes can start as the nervous systfem starts working more and in 10 minuted ATP generation rises. These are effects that are signposts to healing, not something to get rid of. Calling low potassium "detox" is dangerous as it won't be treated correctly. The next most probable thing called "detox" is either induced folate deficiency or paradoxical folate deficiency, percentage unknown but probably in excess of 20%. Both can happen at same time or in sequence. Following those are any of a dozen or more induced deficiencies and possibly even an induced SubAcute Combined Degeneration. After all these are worked through generally healoing is going on at a good clip.