SYMPTOM HISTORY
FIRST PHASE MAIN SYMPTOMS 1988-1995
? New onset of extreme fatigue in head (as if I hadnt slept for weeks)
? Generalised achiness and sometimes tingling all over
? Felt terrible all day if tried to get up early ill, achy and exhausted
? Swollen, painful lymph nodes in neck (88-90), armpits (91-93) and groin (93-95)
? Cold hands and feet/hot hands and feet
? Sensitivity to temperature extremes
? Areas of skin exquisitely painful to touch occasionally
? Occasional excessive thirst
? Swollen fingers upon waking
? Localised night sweats
? Alcohol intolerance
? Vertigo type symptoms (December 90)
? Sensation of low grade fever and actual slight temperature at times
NOTE: I had Glandular Fever (Monos) 3 months before this started (Id already had it the year before as well) and a minor surgery six weeks before I became ill.
This first phase improved after a flu virus in 1991 but I remained very unwell.
SECOND PHASE MAIN SYMPTOMS 1995 2001
? New onset of chronic severe nausea (like severe travel sickness), unusual stomach cramps, loss of appetite and diarrhoea (unrelated to food) associated with severe aching ill feeling, rubbery feeling legs and painful calves and sometimes a squashed feeling in my head
? Extremely hot, throbbing, stinging and painful hands and feet esp. in bed and after food or when exposed to heat.
? Night sweats and chills
? Extreme drugged feeling and feeling very unwell upon waking up
? Pressure headaches and chest pains (98-99)
? Sensation of not being able to draw breath (year 2000)
? Hot, achy, sick and dizzy spells in middle of night felt delirious and about to vomit and have diarrhoea
? Standing and walking caused pain, pressure and stiffness in back and legs followed by severe ill feeling (as if poison coursing through body) all over
? Gradual onset of pain, throbbing, burning and unbearable pressure feelings in back and torso when sitting upright and on hard chairs, anything that isnt foam ie doesnt bounce back and isnt reclined.
? Often feel battered, bruised and sore all over
? In severe spells, feel as if poison or acid running through my body
? Need to eat and drink at certain times immediately to avoid feeling worse
? Occasionally feel episodes of extreme internal pressure and as if body and head will explode get flushed and bloodshot eyes when this happens but blood pressure is normal
NOTE: This phase started after a period of time when I tried to work full time and got extremely tired and also severely overheated during that particular Summer.
An anti-emetic medication put an end to the "stomach" symptoms.
THIRD PHASE MAIN SYMPTOMS 2001
New onset of extreme "CNS" sensitivity
? Unusual pain and electric shock sensations all over followed by severe ill feeling upon lying on anything other than a soft mattress
? Severe internal buzzing, burning and pressure in torso and up spinal cord upon sitting.
? Trembling, buzzing stomach muscles in certain sitting positions
? Episodes of body rigidity followed by buzzing and trembling all over
? Crawling feeling in leg muscles and also hip and torso pain when sitting in some positions.
? Sitting upright feels as if I am being strangled inside.
? Even more severe general ill feeling all over.
? Severe heat intolerance feel as if about to explode, severe pain in hands and feet, sense of complete disorientation and head feels detached
? Standing/sitting problems worse than in second phase
? Constant excessive thirst and urination
? Too much talking and/or noise around me causes fatigue and confusion.
NOTE: Im not sure what caused this catastrophic phase although it happened after severely overheating again. I did improve for the most part from this phase over time after about 6 months of severe symptoms.
Years 2004-2007
Experienced several severe and unusual allergic reactions to viruses (one with severe hives and head swelling, one with the severest form of pomphlyx atype of exzema) the doctor had ever seen, one causing large hives in my eyes) which led to severe weakness, greatly increased muscle stiffness, pain and soreness and a poisoned feeling all over and the development of multiple chemical sensitivities.
2011 Some symptoms are still present from all of the above phases in varying degrees. Others have subsided but I remain very unwell. Symptoms fluctuate and vary in intensity over time.
FIRST PHASE MAIN SYMPTOMS 1988-1995
? New onset of extreme fatigue in head (as if I hadnt slept for weeks)
? Generalised achiness and sometimes tingling all over
? Felt terrible all day if tried to get up early ill, achy and exhausted
? Swollen, painful lymph nodes in neck (88-90), armpits (91-93) and groin (93-95)
? Cold hands and feet/hot hands and feet
? Sensitivity to temperature extremes
? Areas of skin exquisitely painful to touch occasionally
? Occasional excessive thirst
? Swollen fingers upon waking
? Localised night sweats
? Alcohol intolerance
? Vertigo type symptoms (December 90)
? Sensation of low grade fever and actual slight temperature at times
NOTE: I had Glandular Fever (Monos) 3 months before this started (Id already had it the year before as well) and a minor surgery six weeks before I became ill.
This first phase improved after a flu virus in 1991 but I remained very unwell.
SECOND PHASE MAIN SYMPTOMS 1995 2001
? New onset of chronic severe nausea (like severe travel sickness), unusual stomach cramps, loss of appetite and diarrhoea (unrelated to food) associated with severe aching ill feeling, rubbery feeling legs and painful calves and sometimes a squashed feeling in my head
? Extremely hot, throbbing, stinging and painful hands and feet esp. in bed and after food or when exposed to heat.
? Night sweats and chills
? Extreme drugged feeling and feeling very unwell upon waking up
? Pressure headaches and chest pains (98-99)
? Sensation of not being able to draw breath (year 2000)
? Hot, achy, sick and dizzy spells in middle of night felt delirious and about to vomit and have diarrhoea
? Standing and walking caused pain, pressure and stiffness in back and legs followed by severe ill feeling (as if poison coursing through body) all over
? Gradual onset of pain, throbbing, burning and unbearable pressure feelings in back and torso when sitting upright and on hard chairs, anything that isnt foam ie doesnt bounce back and isnt reclined.
? Often feel battered, bruised and sore all over
? In severe spells, feel as if poison or acid running through my body
? Need to eat and drink at certain times immediately to avoid feeling worse
? Occasionally feel episodes of extreme internal pressure and as if body and head will explode get flushed and bloodshot eyes when this happens but blood pressure is normal
NOTE: This phase started after a period of time when I tried to work full time and got extremely tired and also severely overheated during that particular Summer.
An anti-emetic medication put an end to the "stomach" symptoms.
THIRD PHASE MAIN SYMPTOMS 2001
New onset of extreme "CNS" sensitivity
? Unusual pain and electric shock sensations all over followed by severe ill feeling upon lying on anything other than a soft mattress
? Severe internal buzzing, burning and pressure in torso and up spinal cord upon sitting.
? Trembling, buzzing stomach muscles in certain sitting positions
? Episodes of body rigidity followed by buzzing and trembling all over
? Crawling feeling in leg muscles and also hip and torso pain when sitting in some positions.
? Sitting upright feels as if I am being strangled inside.
? Even more severe general ill feeling all over.
? Severe heat intolerance feel as if about to explode, severe pain in hands and feet, sense of complete disorientation and head feels detached
? Standing/sitting problems worse than in second phase
? Constant excessive thirst and urination
? Too much talking and/or noise around me causes fatigue and confusion.
NOTE: Im not sure what caused this catastrophic phase although it happened after severely overheating again. I did improve for the most part from this phase over time after about 6 months of severe symptoms.
Years 2004-2007
Experienced several severe and unusual allergic reactions to viruses (one with severe hives and head swelling, one with the severest form of pomphlyx atype of exzema) the doctor had ever seen, one causing large hives in my eyes) which led to severe weakness, greatly increased muscle stiffness, pain and soreness and a poisoned feeling all over and the development of multiple chemical sensitivities.
2011 Some symptoms are still present from all of the above phases in varying degrees. Others have subsided but I remain very unwell. Symptoms fluctuate and vary in intensity over time.
