PEM Vs PENE

[Seven7]

OK, so I am confused.

What is the difference between PEM and PENE???

TX!
L

 

[Valentijn]

One has the widely despised word "malaise" in it. They both describe the same symptom of ME/CFS, but many people think "PENE" is a more accurate and precise name (myself included).

 

[bluesky]

PEM is Post Exertional Malaise

PENE is Post Exertional Neuroimmune Exhaustion from the ICC criteria:

A.Post exertional neuroimmune exhaustion (PENEpen-e):Compulsory

This cardinal feature is a pathological inability to produce sufficient energy on demand with prominent symptoms primarily in
the neuroimmune regions. Characteristics are as follows:

1. Marked, rapid physical and ? or cognitive fatigability in response to exertion,which may be minimal such as activities
of daily living or simple mental tasks, can be debilitating and cause a relapse.

2. Post exertional symptom exacerbation: e.g. acuteflu-like symptoms,pain and worsening of other symptoms.

3. Postexertional exhaustion may occur mmediately after activity or be delayed by hours or days.

4. Recovery period is prolonged,usually taking 24 h or longer. A relapse can last days,weeks or longer.

5. Low threshold of physical and mental fatigability (lack of stamina) results in a substantial reduction in pre-illness
activity level.

You can see the full text here:
http://www.meassociation.org.uk/wp-content/uploads/2011/10/ICC-FOR-ME-October-2011.pdf

 

[Seven7]

TX u all!

So bad for the PENE name, my household speaks Spanish They need a name that I can use in public.

 

[bluesky]

They need a name that I can use in public.

I'm afraid to ask......

 

[svetoslav80]

This disease doesn't have luck with its medical terms. First this stupid sounding Chronic Fatigue Syndrome, now PENE, which means penis in spanish, and I'm not sure if I should use it.

 

[Valentijn]

Yo tengo PENE? I can see how that could get confusing

 

[Seven7]

Hehehehe. We tried to play with the word on how to use it, had a good laugh, no matter how much you try, there is no way you can take anything you say seriously with the word w/o having a sexual connotation.

 

[ukxmrv]

I was told that it is also slang in Italian for penis if pronounced in a certain way.

 

[Sushi]

Yo tengo PENE?

For those contemplating a sex change, the International Criteria just gave more than surgical options!

Sushi