Thanks Fredd. I look forward to reading the questionnaire when it's completed. Also I take it that you believe cfs/m.e and fms are all due to B12 problems? Not that it is just a sub group/misdiagnosed m.e patients?
Hi Anniekim,
I take it that you believe cfs/m.e and fms are all due to B12 problems?
That would be a vast simplification. There are 4 (2 CNS and 2 body deficiencies, not one all inclusive b12 deficiency) distinct b12 deficiency syndromes. Then there is the folate deficiency that is so tightly linked to b12 problems that it is only in the last two years that I have been able to describe the differences. That is what this questionaire is about, the folate deficiency. On top of that the b12/folate deficiencies damage our entire disgestive system, immune system, neurological and everything else. So there are cascading other problems and deficiencies. So in addition to the basic 5 there are 6 or so secondary critical deficiencies and then a couple of dozen possible teritary deficiencies. The basic b12/folate deficiency symptoms account for around 400 total symptoms or secondary diagnoses such as IBS, MCS, neuropathy, at least some autoimmune disorders, every single symptom of ME, CFS and FMS and far more. It may actually be a genetic folate problem that is at the root of things. Also, as a major complication, these deficiencies just appear to set the stage for CFS/FMS. In many it then takes something like a virus or bacterial infection or vaccination or even traumatic injury to kick a fragile system into a knocked down position and then it stays there without outside help. Then the many symptoms tend to worsen and increase over the years. As the messed up digestive system is less able to absorb things more and more deficiencies creep in. As a damaged immune system works more and more poorly all sorts of viruses and bacteria get a foothold. As the system becomes more and more hair trigger, autoimmun, allergic, asthma etc all increases and tissue healing gets worse and worse. These b12/folate deficienciesm in the body is like fixing an IPAD with a sledge hammer, knocked to pieces. After 8.5 years of healing and rehabilitation I no longer have 175 symptoms I had 9 years ago. The ones I have left are due to residual neurological damage that is part of an extreme prolonged b12 deficiency (it went unrecognized and untreated for decades since the docs would rather call me names like "yuppie flu" and "imaginary woman's disease" then diagnose and treat real problems) and getting broadsided by a car in 1972 with broken back (3 vertabras fractured and nerve and disk damage) and some other hard milage and a few things from paraqdoxical folate deficiency. The FMS and CFS have been fully gone for years. As I just found paradoxical folate deficiency this past year or two, the things due to that now have a chance to heal. That isn't even an officially name or documented disorder. It barely became possible to identify it becasue Metafolin has only been available for a few years.
I came close to death before I found mb12 and then the rest pf the protocol. However, not b12 deificiency, not FMS, not CSF would have been on the death certificate. What would have been on it would have been congestive heart failure, or pneumonia or hospital aquired infection or something else. Nobody dies of the CFS/FMS. They die of one of the other things caused by damged endothelial tissues (heart, veins, arteries), infection from poor immune system, severe allergic reaction, asthma etc., falling from vertigo or getting driven to he doctor. That is misleading to have such a devastating disease and a zero death rate. As there are probably a couple of hundred named problems based on a few of the symtpoms each, that is what they die of.
Docs NEVER sit still and listen to a recitation of 200 symptoms. Something with 200 non-specific symptoms is never going to be diagnosed. They take 10 of them and pin a name on them and ship the person off to 10- specialists to each identify one or two things each based on 10 symptoms or so and ignore 100 of them for decades.