- Messages
- 38
Hi everybody,
This is my first post. My story of CFS is a long and complex one (as I imagine most are), I won't go into every detail here. I am a 35 year old male and have been suffering from CFS for over six years. I think the triggers were a combination of extreme self-imposed stress and a three year battle with chronic bacterial prostatitis.
I have been trying Vital Whey (which I believe is another name for ImmunoPro Rx) for about ten days now and I think I am experiencing a worsening of symptoms. I'm not sure if the stuff is doing anything or if the change in my symptoms is just the normal ebb and flow of the condition. If the whey is helping to increase my glutathione levels and free some toxins, when would I expect to feel an improvement in my symptoms? Should I have done by now?
I am taking two or three doses (each of 20g) per day. I took my first dose on the Thursday evening before bed, on the Friday morning I woke up feeling worse than usual with a new type of headache which I had not previously experienced in my years of CFS. Also, on that day I happened to be going to see my osteopath for a session of the Perrin technique (my lymphatic system around my head and neck is badly clogged) and he remarked that my neck was very hot (to which I agreed). I don't believe I have experienced that symptom previously either, hence why I think the whey may be doing something.
Today, I have the headache again, but not as bad as the first day. It seems to vary from day-to-day. This Friday, just gone, I did not feel quite so bad (I won't use the term better). And my neck wasn't quite so hot. But today I am feeling pretty awful again with a thick head and many aches and pains. I used to take paracetamol for the pain (and have done for a number of years), but after realising that it lowers glutathione levels I have recently stopped. I also used to take ibuprofen, but that was making my IBS much worse, in fact it was making everything worse! So, I stopped taking that at the beginning of the year.
For the past seven or eight months I have been experiencing a lot of pain in the left side of my neck (front and back) and just below the left occipital node. I have also been experiencing ear ache in the left ear. I had MRI and CT scans of my head and neck and they did not find anything. I had a dental x-ray and they found some infection by my bottom left wisdom tooth. So I had my bottom two wisdom teeth removed under general anesthetic, but I still have the pain (although not quite as bad as it was). So, I have come to the conclusion it must be lymph causing the pain (hence going to see the osteopath). I was surprised that the CT and MRI scans did not show the problem with my wisdom tooth.
In the Spring of 2010 I experienced a big improvement in my symptoms. This was after changing my diet (eliminating dairy, wheat and rye), following Dr. Myhill's mitochondrial support protocol and strictly following CBT and preemptive rest strategies. Then in the April of that year I had my first amalgam filling and I never improved again after that. I don't know if it is coincidence or if I have a sensitivity to mercury.
I am considering following the protocol for the Methylation Cycle Block theory of CFS. I notice that it has some similarities to Freddd's B-12 treatment, but that recommends avoiding glutathione. Why this difference?
In addition to the Vital Whey, I am presently taking: Colostrum (almost finished my first bottle, don't think it is doing anything), lactoferrin (ditto), Multibionta multi-vitamin and milk thistle. I am also being prescribed fluoxetine because I suffer from anxiety and depression. I am taking 20mg per day.
Thanks for reading all of that. I hope that I can make some valuable contribution to the forum in the future.
This is my first post. My story of CFS is a long and complex one (as I imagine most are), I won't go into every detail here. I am a 35 year old male and have been suffering from CFS for over six years. I think the triggers were a combination of extreme self-imposed stress and a three year battle with chronic bacterial prostatitis.
I have been trying Vital Whey (which I believe is another name for ImmunoPro Rx) for about ten days now and I think I am experiencing a worsening of symptoms. I'm not sure if the stuff is doing anything or if the change in my symptoms is just the normal ebb and flow of the condition. If the whey is helping to increase my glutathione levels and free some toxins, when would I expect to feel an improvement in my symptoms? Should I have done by now?
I am taking two or three doses (each of 20g) per day. I took my first dose on the Thursday evening before bed, on the Friday morning I woke up feeling worse than usual with a new type of headache which I had not previously experienced in my years of CFS. Also, on that day I happened to be going to see my osteopath for a session of the Perrin technique (my lymphatic system around my head and neck is badly clogged) and he remarked that my neck was very hot (to which I agreed). I don't believe I have experienced that symptom previously either, hence why I think the whey may be doing something.
Today, I have the headache again, but not as bad as the first day. It seems to vary from day-to-day. This Friday, just gone, I did not feel quite so bad (I won't use the term better). And my neck wasn't quite so hot. But today I am feeling pretty awful again with a thick head and many aches and pains. I used to take paracetamol for the pain (and have done for a number of years), but after realising that it lowers glutathione levels I have recently stopped. I also used to take ibuprofen, but that was making my IBS much worse, in fact it was making everything worse! So, I stopped taking that at the beginning of the year.
For the past seven or eight months I have been experiencing a lot of pain in the left side of my neck (front and back) and just below the left occipital node. I have also been experiencing ear ache in the left ear. I had MRI and CT scans of my head and neck and they did not find anything. I had a dental x-ray and they found some infection by my bottom left wisdom tooth. So I had my bottom two wisdom teeth removed under general anesthetic, but I still have the pain (although not quite as bad as it was). So, I have come to the conclusion it must be lymph causing the pain (hence going to see the osteopath). I was surprised that the CT and MRI scans did not show the problem with my wisdom tooth.
In the Spring of 2010 I experienced a big improvement in my symptoms. This was after changing my diet (eliminating dairy, wheat and rye), following Dr. Myhill's mitochondrial support protocol and strictly following CBT and preemptive rest strategies. Then in the April of that year I had my first amalgam filling and I never improved again after that. I don't know if it is coincidence or if I have a sensitivity to mercury.
I am considering following the protocol for the Methylation Cycle Block theory of CFS. I notice that it has some similarities to Freddd's B-12 treatment, but that recommends avoiding glutathione. Why this difference?
In addition to the Vital Whey, I am presently taking: Colostrum (almost finished my first bottle, don't think it is doing anything), lactoferrin (ditto), Multibionta multi-vitamin and milk thistle. I am also being prescribed fluoxetine because I suffer from anxiety and depression. I am taking 20mg per day.
Thanks for reading all of that. I hope that I can make some valuable contribution to the forum in the future.