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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Mark, we have all the bolded symptoms... In addition, the white and yellow tongue coating, and the blood stain scattered therein. We also have blood stains underneath the skin, as small as needle-head. Weight-loss and hair-loss. The standing and breath difficulty. The skin will become very dry. You feel a swimming snake or worm is moving inside your body and bite you everywhere. the muscle withers. The traditional doctor diagose "the failure/dsyfunction of spleen". The CD4 and CD8 is lower than normal people and ratio between them will reverse.Some people think it is CFS, but many don't. The way of spreading is different. Sex is only one way of passing the virus. The infected all believe it can be passed via saliva. Some claimed they can pass the virus via sweat... The CDC guy being infected in Guangdong insists it is a super-bacteria instead of virus. People have different ideas about this. But many don't believe it is the mutation of HIV, because no matter how the virus evolves, it can not be so infectious and the syptoms are continous. We all know HIV will have dormant period.
we are waiting for the CDC to say "Yes" to Charles and let him to identify the unkown so-called "virus" through virochip.
I don't want to guess anymore, which is meaningless. The syptoms are caused by co-infection, I think.
Hanchuchu,
I just lost a long response to your post. Hate it when that happens...Where is that "autosave" when I need it?
Here is a summary of my comments:
Us CFS'rs or XAND'ers or whatever we are, are just statistics on a spreadsheet at this point. Until there is enough business/political interest to move research foward. I am hoping that the WPI XMRV news is the catalyst to move this whole thing ahead after the 25+ years I (and many others) have suffered at the expense of the government who chose to ignore us way back when.
It comes down to politics/business now. HEre in the U.S., we are not a "demoracy" as the news would lead some to believe on TV or in newspapers. Businesses here in the U.S. heavily influence government, and businesses basically run the show. PLease watch the video I posted as another thread below about "genetically" engineered food and you will see what I mean about business controlling what happens in the world. How businesses will even discredit researchers, have them removed, if the news s not favorable to their cause.
It will take well organized large groups of people to move "CFS" research foward if the WPI news doesn't get the attention of the appropraite powers. So lets hang on for 6 months or so and see what happens with the WPI study findings and duplicate studies. If nothing is done then, we can all organize and try force governents to do something and get our message through then!
Best regards,
Mark
Jackie,
John Chia replied my email, saying that it may be a new entervirus. Maybe i should take more tests now.
we are still waiting for the response from the CDC, whether they want to accept Charles' assistance or not.
Guys,
Thanks for being with us for such a long time.
hanchuchu, Dr. Chia uses a product called Oxymatrine/Equilibrant and Cort posted a message that forum members can get free shipping for a limited time. You should be able to get the individual herbs in China. Here is the label:
Anyone use this drug?
Pasteur Shanghai just selected five people for test purpose. Obviously, it is only a trial prior to making the final decision to do research.
Everyone is waiting for the postponed CDC's test...
It seems like I have to use injections now to relieve the chest pain, which relieved just for less than one week and then come back again...
I have learned to be in peace with fate and destiny.
My favorite Kefir story is about Hank, a friend I took in when he was going through Chemo and Radiation for Oral Cancer. One of the nasty side effects of his treatment was oral thrush - a really nasty carpet-like coating on his tongue. His docs had tried antifungals (both pills and oral rinse) without much success. I kept urging him to drink a little Kefir, but he kept resisting. One day, I came home and he met me at the door and stuck his tongue out. I didn't know what he was trying to show me, but when I looked closer, ALL of the thrush was gone. Secretly, he'd been sipping some Kefir during the week (probably not more than 4-6 ounces a day).
hanchuchu,
Is your tongue coated with a thick white/yellow carpet-like covering? It may be thrush (candida albicans) if it appears as creamy-white or bluish-white patches on the tongue - which is inflamed and sometimes beefy red - and on the lining of the mouth, or in the throat. If it's thrush, I know of a remedy: Kefir. Can I send you dehydrated kefir grains by mail?
Here's a story that I told about kefir and thrush when I first joined the forums.